Self-assessment

3 minute read time.

 

The whole point and purpose of this blog, or diary, or whatever it is, is to keep a record of how I feel, and what progress I'm making - or not making. If I don't keep it up to date, it will have no point or purpose at all. Exactly like the rest of my life.

*cue the wailing of a tiny violin*

So, let us take stock:

- Tiredness: this is ongoing. I believe it has less to do with the cancer and much more to do with the pleural effusion - although the effusion is indirectly caused by the cancer, so it all goes round and round and round in the circle game, lalalala. Treatment for the effusion seems to have fallen down the cracks between departments at the Churchill; call me crazy (why not, many people have), but I do feel it might be better if they took a more holistic overview;

- Breathlessness: see above; all part of the same issue;

- Burning in the throat after eating: nasty, but Mostly Harmless, I believe. Something fizzy, like Andrews/Enos/Alka Seltzer usually helps. These are, for some reason, surprisingly hard to find anywhere but in hardcore pharmacies; they seem to have been superseded by Gaviscon, which is no bloody use for anything, so far as I can tell;

- Coughing: the cough is a new development. Again, it's only slight, probably Mostly Harmless, almost certainly tied into the effusion;

- Tummy: bloated and sticky-outy (could this post be any more attractive?). Also, rock solid - not fat. When I had my laparoscopy, they apparently drained a lot of liquid out of my tummy. Has it come back?

- Appetite: very much reduced, and the number of things I can eat, or feel that I want to eat, is also drastically reduced. Cake, choklit, ice-cream: no (I can manage very tiny amounts of choklit; a miniature bag of Maltesers - why is there always a flat one in every bag? - or an individual mini Green & Black's bar). You'd think this would be a Good Thing, but no - see 'bloaty tummy' above. I went through a phase of fancying salty snacks - Doritos, Japanese rice crackers - but that seems to have passed. Probably just as well, as I doubt the salt was good for my blood pressure. Fishy things seem to be okay; also, proving that there is a god after all, Indian food. Only kiddie-sized portions, mind you, but better nor nowt;

- Constipation: occasional. Even on an everyday basis, Nature has to be encouraged to take its course (drinking warm water; rocking) (yes, this is truly a most delightful post);

- Weeing: mostly okay, apart from one bout of cystitis, probably caused by unnecessary catheter unpleasantness.

Note what's absent from the above? Pain, or any increase in pain. In fact, not being at work probably means that I have fewer headaches. The tumour doesn't seem to be causing me more than a very little additional discomfort (I do hope that's not famous last words). Probably just as well, since Superdrug have taken it upon themselves to refuse me Solpadeine. Bastards.

So, to sum up: if they would only fix the sodding pleural effusion, I would, quite possibly, be fit and - at least on the surface, where it counts - healthy, and able to live a normal life, or as normal as my life ever gets. And go back to work, and earn some money. Money! Oh, money, I think I miss you worst of all!

But I'm too tired to chase 'them' around to try to get them to do this. I don't even know who the 'they' is - are - wotever - who I should be chasing.

And, after all, after my clinic appointment on 12 September, I will, I presume, be starting chemotherapy. And that'll be a game-changer, if ever there was one.

I'll just hold my breath till then. Okay?

 

Anonymous
  • FormerMember
    FormerMember

    Hi there - I also write a daily journal though about my struggles with work. Your strggle with cancer puts my life very much into perspective.

    However, one thing that I believe is positive about the journal is the focus on beating problems - I dont blame other people for my problems - I try to analyse them and take appropriate action including advice from others!

    Being self aware and honest is not easy even when writing to oneself - far more difficult when writing to others like you are!

    I look forward to your next post,

    best wishes, John

  • FormerMember
    FormerMember

    Phew, I'm holding my breath too!

    I suggest you do breathe a little between now and the 12 or they might have a few more ailments to add to the list.. like not breathing!

    Hang in there and a big hug to you

    Little My xxx

    ps I remember the' rocking' fondly these day... I'm now the other way big time!

  • FormerMember
    FormerMember

    Hi Hilary,

    Glad you're not in pain, but on the Solpadeine/officious Superdrug isse, would a friend go & buy them for you occasionally? Or maybe your nice brother & SIL could post you a jiffybag?My partner & I have always used Solpadeine, but to get round the over-cautious nannies we alternate in buying it. As well as that, we go to different pharmacies where possible, so the end result is a football-pools type of permutation that gives us lots of leeway! I should stress that neither of us is a codeine addict,we're just protesting in our own quiet way about being treated like babies.

    You don't say anything in your Self-Assessment about your emotional/psychological state, though perhaps that's too private; but despite your outwardly cheerful/flip/facetious comments I wonder if you're feeling a bit low. If so, don't limit yourself to just intermittent Diary entries - come on here & have a great big rant!

    Love & hugs,

    Annie xxx

  • FormerMember
    FormerMember

    You will note it's taken me a week to figure out the etiquette of replying to blog comments. I'm probably still doing it wrong.

    Annie - I am so furious about Superdrug! Is it any of their damn business if I want to knock myself into a stupor? I was actually doing pretty well at buying it from different places so long as I was at work - two pharmacists in Oxford, three in Summertown, two more in Kidlington, all on the way home (no, I didn't stop at all of them all at once!!) - but since I've been at home it's more difficult. And having to carry on this way *does* make you feel like a junkie. Grrrrrr.

    My emotional/psychological state is rather subject to change without notice. I don't seem to care about the cancer diagnosis; when I was told, I just went, "Oh. Well. These things happen." I do dislike being ill and tired all the time, though - but I think that's the pleural effusion that causes that - and I am very scared at the prospect of chemo; still more with the prospect of chemo plus the effusion. I'm struggling to breathe as it is, what if it makes it worse?

    Reading other people's blogs, though, does make me see that I'm currently getting off pretty lightly, so I'm thankful for that. Insofar as one can be thankful about anything to do with bloody cancer!

    *hugs*