People who need people

5 minute read time.

It's two thirty in the afternoon, and I am typing this in my nightie. "Are you extra-tired today?" Judy asked, when I came downstairs just after midday (it might have been a little sooner, but the ShadowCat had come in out of the rain and wanted me to know about it). No, I'm not, or not especially. Just meh. The week before last was the week of Bruce (and getting PICC lines put in, and other general excitement); last week was the Week of Many Visitors. This week is shaping up to be the Week of Nothing Much in Particular. I don't even have chemo to liven things up - or whatever it does.

So, meh.

The Week of Many Visitors was good, anyway, and not just because people kept bringing me things - late birthday pressies, I've-been-abroad souvenirs, just-because bits and pieces. Of course I appreciate pressies, but it's not a requirement, you are quite welcome round my house without so much as a bunch of petrol station flowers. It's the guest that counts.

Lynn was here when we came back from Manchester, of course, because she was minding the house - and the cats, who, apparently, had behaved immaculately. As soon as we got back, first Shadow and then Jenny decided to stay out all night. Anyway: the weather was still pretty good back then, so she was able first to strim the lawn and then to mow it, which made the garden look altogether more respectable, although I think the cats are a bit miffed at losing their hiding places. I'm not sure, but I think Lynn actually quite enjoys mowing the lawn; I'm pretty sure she likes spending time in the garden, anyway, as her flat in London doesn't have so much as a window box. We have a nice garden, and we're happy to share, so everyone wins. I think ...

Lynn stayed till Tuesday morning. My brother came up from Bristol on Monday, bringing some charm bracelet beads as an extra birthday pressie, plus some yummy home-made flapjack - and, more importantly, his lovely self. Tuesday afternoon was another wholly unremarkable chemo session, made easier both by the PICC line and by my passing out for the duration. This week my ankles did not swell up on Thursday (or at all), but I don't know whether that's because I slept with a big pile of towels under my feet or because they weren't going to. Then we barely had time to get the spare bedding washed and dried before Penny turned up, bearing yet more birthday pressies (surely, by now, the last?), plus souvenirs from Rome and Amsterdam (she brought Judy tulips which, she said, it was quite difficult to find actual Dutch tulips in Amsterdam) to stay for a couple of nights around a conference in Birmingham. It may not have been the best time for a conference, or anything else, in Birmingham; that was the day the Midlands flooded. Nowhere near Penny's meeting, fortunately, but it's all very worrying. I'm tired of the rain. It'd just better be falling on the damned reservoirs, that's all I say, else I shall be cross. With whom, I don't know. The rain gods, I suppose. Or the government, but no change there.

Penny wins a special prize, one I haven't managed to think up a nifty name for, for prompt and rapid PICC line cover production (you can't call it that, for a start): I'd put out a plea on Facebook on Tuesday, and by Wednesday night I was wearing one. By Friday, when Penny went home again, I had three. Yay! and also thank you, Penny! I wish I were creative. I might as well save time and energy, I'm not, and that's never going to change, but still. It would be nice to be able to do something useful.

Friday: Rebecca dropped in for an hour - and no, that wasn't the last of the birthday pressies, she brought choklit and biccies and, indeed, choklit bikkies - and so did one of the Mels from ex-YBP (there are two of them, and they're both Mel B, so it's hard to differentiate), bringing flowers. By this time I was getting a bit tired and overwhelmed, but I hope I managed to be interesting enough (fat chance, I cannot help but feel) that people will want to come again. Because that was the last of it, and by the next day I was At A Loss.

I like to have people around me. Maybe I think that if I hide in a crowd, Mr Crab won't be able to find me, though I guess it doesn't really work like that. If I miss work at all - well, I miss the pay cheque, I'll tell you that - then what I miss is the people, and having noise and bustle around me. I'm not complaining about being at home, this is a very, very, very fine house, but it does get quiet sometimes. I suppose I miss having something to occupy my mind, too; I rather fear that my brain is slowly putrefying, with nothing but WWF to stimulate it. (On the other hand, I do not miss the commute. Not at all. When I worry, which I often do, dealing with that commute is high on the list of Things What I Worry About. Not as high as "Is Crabby going to kill me, and, if so, when?", but pretty high.)

So: I'm feeling a bit blah now. In fact, after everyone had gone home, I started to get anxious; not panicky, not like I was before, but nervy and restless. Luckily I am now filled with Lofepramine and have the-thing-that-isn't-Diazepam for back-up, so I hope I can keep the panic at bay.

We do have a few things on the schedule: we still have to go up to the Churchill tomorrow, to get my dressing changed. We'd thought I could get that done at the GP's, or by the district nurse, but, apparently, no; they don't have the right equipment, we have to have the dressings. This seems very strange to me, but if that's the way it is ... well, then, that's the way it is. Judy's going up to London on Tuesday evening - I do hope London doesn't flood, it seems that every time anyone goes anywhere it floods - and my brother has promised to visit on Friday, so I have that to look forward to. It still leaves time for an awful lot of WWF, though.

And, indeed, time for baths. I should go and do something about that, and hope that I can stave off the anxiety until next week, when everything starts over again: consultant on Monday, chemo on Tuesday ...

Oh, the sheer and utter joy of it all.

Anonymous
  • FormerMember
    FormerMember

    Hils, I wish you lived closer , cause I feel your anxiety and that feeling of having nothing to look forward to and people do really need people. I don't get many visitors and people stop asking you to go places when you have anxiety and keep turning them down.

    Lets hope we can kick Mr crab and the anxiety away for good

    Keep your chin up, we have to keep going and keep writing your blogs, has anyone told you your quite good at them ;))))) lol x

    Roobs xx

  • FormerMember
    FormerMember

    Hilary, there's nowt wrong with typing in your nightie at two thirty in the afternoon ...... the weather being the way it is just now, it seems a bit of a waste of time getting dressed just to loll around. Truth be known, I was back into my comfies by mid afternoon because it feel a lot cosier in this infernal gloom. Oh and what can be nicer than doing the Tesco shop in your pjs and dressing gown ......  the online groceries, I hasten to add ( note to self, make sure to be dressed when the delivery man arrives )

    However the thoughts of visitors would certainly change my view ....... but they are few and far between, all or nothing. A bit like buses really, wait for ages and then they all turn up at once. Yes they certainly do help to take your mind off any worries and for a while cancer is pushed out of mind, so I understand how much they must help you ...... a welcome change from the routine of hospital visits and so forth. It would be lovely if we all lived close by so we could all prop each other up .........

    Hopefully the sunshine will reappear and that will surely cheer you up then you can sit in the garden, in the meantime I hope that all goes well at the Churchill. Keep your chin up, pet.

    Love and hugs, Joycee xxx

  • FormerMember
    FormerMember

    Hi Hils,

    I know some people who are perfectly well that spend all day in their pjamas. Admittedly they do this on a Sunday when they fully expect not to have (or want) visitors, and I suppose they are feeling a bit meh too?

    I can only concurr with the need for visitors when being stuck at home feeling like sh*te. I would have like more of them even though they did not come bearing gifts. My neighbour lost his wife last year and he would pop round and see me most days, it gave him some company  and it was a good thing for both of us.

    I am confused at the special dressings that you must get from Churchill, but at least they are taking care of you, even if it does mean more road trips.

    I hope mr crab (sorry I don't want to give him capitals) is one visitor who will soon get the hint that he has stayed too long and really should just, well... piss off!

    Tight lines

    Tim xxx

  • FormerMember
    FormerMember

    Hi Hils,

    Sorry you've got a lonely week, especially in this rotten weather when you can't even sit in your lovely garden. It's so unfair that everyone visits in the same week. Sod's law operating again as it always seems to where mr. crab's concerned.

    We had a heck of a lot of rain but no flooding in my neck of the Midlands. It's the general dreariness that gets you down, day after day of gloom, lights on from early afternoon... oh these English summers. But there is an outing of sorts for you tomorrow where you'll be among real 3D people, albeit not in your favourite environment. And a lovely brotherly visit on Friday.

    And London will definitely not flood.

    Love & hugs, xxx

  • Hi Hils it seems it's either a feast or a famine wouldn't it be good if it was a couple of nice meals a week .If there is no reason for you to be in your twin set and pearls then why not your Jim jams? I have seen girls in the supermarket in their PJs and rollers not Joycee I hasten to add.There was a time at work when we where having a rough time of it we would say "I'm going to start coming to work in my nightie so they will section me and finish me on he sick" how times change.I too think we all need visitors to break up the day to bring news and chat.A week or two off work sounds great but when it's months and months and your really ill that isn't so great cabin fever sneaks in when your stuck in the house all day with no one to talk to but yourself. The rain seems to be getting everyone down a bit of sun does help.Its good you had such a speedy reply about the PICC cover and now have a small collection.Would that every week was a Bruce type week.Cant the Churchill give you the dressings to take to the Doctors to save you the journey? I suppose they will have some beaurocratic reason as to why this is not possible.Keep on kicking crabby up the arse he so deserves it.Hope things go smoothly at the Churcill and that you manage to keep the anxiety at bay.Much love and hugs Cruton xxxx