Little things

2 minute read time.

I really wanted my lunch today. You can't imagine what a relief that was, after several days where the most I could do was choke down a piece of toast. And (whisper it) my innards are behaving a little better, though that's usually subject to change without notice.

We've found a thing for recharging my MP3 player in hospital - basically a plug with a USB port, which is only logical - so that's going straight into the go bag. Of course, all this is for a hospital stay that is now not going to happen, but it's almost bound to be useful in the future.

I had to ring JobCentre Plus this morning. I'd had a letter from them to say my medical certificate had expired. Well, no, it hadn't, my doctor signed it on 12 January for 6 months. So I sent their form back, along with a copy of the certificate. Then, on Saturday, I got the identical letter again. I decided I'd better ring them this time. After about 20 minutes of holding music hell (I am going to find a way to travel back in time and kill Vivaldi), I got through to someone. Apparently they can't accept certificates for that length of time. So I'll have to get my doctor to write me a new certificate, and then send that on. *sigh*

I'm seeing my GP tomorrow, to discuss the panic attacks and the new medication I had from the emergency doctor, so we can do the certificate then.

No other major crises. I've spoken to the doctor in charge of the clinical trial and explained to her why I felt I couldn't do it, and she seemed okay. So then all I had to do was wait for confirmation of the regular chemo - and, hey presto, I got a phone call from the chemo clinic this evening, to give me a date.  It'll start on 15 May: three weeks on paxitaxol, one week off, another three weeks, and that's it. Inconveniently, that period covers both my birthday (a low-key one this year, I think) and Bruce. I may have to see if we can get our tickets altered to disabled ones; I remember how lousy I felt on chemo last time, and that was with two weeks off between treatments.

Still, I'm not complaining. You never heard a woman so happy to be starting chemo. For one thing, the sooner we start, the sooner it'll be over - and this time, we'll keep on top of them to make sure I get the aftercare I need - and, for another thing, just having a date and knowing that things are moving, might help with the panic.

Day trip to Yarnton Garden Centre today. Do we know how to live, or what?

Anonymous
  • FormerMember
    FormerMember

    Good luck with chemo Hilary!

    Respect

    x

  • FormerMember
    FormerMember

    I LIKE this post! I know it does sound weird in one way to look forward to chemo, but when you've been just hanging on like some kind of lemon, it's a damned relief to finally get dates!! Of course there's always an inconvenience - my hospital stay involved me missing mother's day and Deri's old school having the Closing Down Party, but at least it means we're still here to do other stuff eh? ;)

    As for the jobcentre, it makes me shudder - the imcompetence I mean. I told you already about their cock-up with my claim... I mean, how difficult is it to distinguish between a MONTHLY income and a non-existent weekly one, then calculate I don't qualify because they put my monthly SSP down as weekly?? Ah bless them all, with something painful preferably.

    Good luck getting them to understand the simplicity of your sick notes ;)

    I quite like garden centres...............

    Love 'n' Hugs xxxxxxxx

  • FormerMember
    FormerMember

    Hello,

    A little thing here.... :)

    I remember feeling hungry one day for the first time in about 6 months. It was odd but nice. Glad you had that.

    I am also glad that your chemo is starting again soon. I am hoping to go back to work on the 14th, so a big week eh? I hope it goes well and they get their arses into gear to do an op as soon as after the chemo. Or that it does a lot of good at least. And make sure you get the after care. I don't like hearing how some of you don't get good treatment and care etc. Makes me realise I've been very lucky with my consultants and hospitals. (when did I become someone who has consultants??? still catches me by surprise sometimes that one) anyway, back to you... Having cancer is shit. We know that. So, play the cancer cards and get disabled tickets and a wheelchair and the whole thing! You have got to go and see Bruce!!! and I reckon if you really milk it you might get some freebies etc. Not sure I could cope with being called a cancer victim or some such though...  anyway, get Judy on the phone to do the poor Hilary routine and get it sorted.

    I have had 2 dull birthdays now. Last year's was in hospital getting a bag, this year just out of hospital giving it back! I think i have exhausted the possibilities of bag giving and taking as birthday treats so wonder what next year will hold, assuming I am here for it.? Oh sorry, back to you... birthday on chemo sounds rubbish. I would get a kitten as compensation.

     Don't vomit with all the excitement now, would you? Not now you have started eating more than toast.

    Hope the doc gives you lots of nice drugs that keep away the panic attacks and the bed monsters.... I'm gong to get a list of things I am allowed to do on Wedneday.

    My son has been introduced to the delights of the jobcentre. He got told to go away. Eventually after doing it all online, they gave him an appointment to help him get a job. He spend nearly half his money on bus fares to get there. They said, come back in a fortnight and that was it. Must be so busy playing Vivaldi to help anyone eh? Bastards.

    Dinner is ready, so bye for now.

    the biggest of hugs to you and so pleased that you are not so hurty and panicky. Long may it last.

    Lots of love to my fave crabby lady

    Little My xxx

     

  • Hi Hilary to all the bad and rotten stuff I say buggeration and if Ems doesn't mind pissflaps too.Cancer itself is bloody well enough to Cope with but it seems that beaurocracy gets some sort of perverse enjoyment out of making everything as difficult as they possibly can.The putting you on hold and having to listen to awful music is I think to test not only your patience but your endurance if you endure then you get to speak to a person who usually is quite useless and has to put you back on hold with awful music whilst they get advice from someone else who is about as much use as the first person you spoke to.Sorry I'm on my soap box will get off it now.I hope the GP is helpful and you get a proper medication regimen and do go for the disabled tickets and any perks you can get when you go to see The Boss.I hope the chemo isn't to shitty and that you get the proper care you should have had in the begining.Hope the appetite continues to improve and I like garden centres too my apologies for my sewer mouth would you like some Vivaldi to compensate huge hugs and much love Cruton xxxxxx
  • FormerMember
    FormerMember
    Oh my goodness, it's when you have held forever and you finally get a person and they then proceed to "drop the phone" and back to square one. Hils, I hope your lunch was a good one and long may your appetite continue. Great you have a date for your chemo and definitely keep everyone on their toes with the "what next's". I am not too far away from Oxford at weekends do if you need some support and I'll come running.....well, not literally! Big hug xxxx