Dear *hospital that shall be nameless*

3 minute read time.

Hi, how are you? Remember me? The 'pleasant' middle-aged lady who had the exploratory laparoscopy?  I haven't seen or heard from you for a whole week, so I think you might've forgotten me  again. Either way, that's seven whole days for me to build up a whole steam of resentment.

Let's begin with the lead-in time. You guys know I've got cancer - yes? That's why you're going to do this op. So, it's a given that I'm scared and upset and stressed out the wazoo, wherever that may be. That being the case, do you really think it's considerate to tell me not to eat from midnight, not to drink from 8.00 am, call me into hospital for 11.00 am, and then just leave me there for five hours, still on nil by mouth, with not a word to keep me updated? I'm telling you, going under the anaesthetic came as quite the relief. It's my personal opinion that you had forgotten all about me. Any word on that?

Then: claustrophobia. I warned you about that. I told you I couldn't bear any sort of confinement. So what did you do? You stuck oxygen tubes up my nose and put me on a catheter. "Your oxygen levels are low," you said. You know why that was? It was because I was having a screaming panic attack. As soon as I pulled the air lines out and was breathing for myself, my levels went right back to normal.

As for the catheter: there was no reason in the world for that to stay in post-op - I was fully ambulant and capable of getting to the loo by myself. But oh, no, you had to leave it in overnight. Why? Certainly not for my convenience (as it were), so I guess it must have been for yours.

I've got a urinary tract infection now, by the way. Thanks for that.

Then: the stitches. I don't know what you did with these stitches, but they totally perplexed my practice nurse. She managed to get the straightforward one out, with a bit of an effort, but the ones in my tummy button have totally defeated her. When one of them started bleeding - I think your estimate of four-five days for removal might've been a bit optimistic,but then, five minutes before you said that you told me they would self-destruct absorb themselves, which was also patently wrong - the nurse gave up. We're going to try again on Friday. Let's hope for better luck, eh?

While I'm here, you did promise me painkillers to take home with me. That didn't happen. Maybe if it had've done, I wouldn't have been in so much pain following the op. That's logic, as I know and use it.

You tell me I have peritoneal cancer, and that you're going to try chemotherapy. When is that going to happen, exactly? As I said, it's been a week with no word. Has the magic gone out of our special relationship? I fear you don't love me any more.

Actually, I don't know why I'm surprised, since it takes you at least a week to move from one step of the procedure to the next. That's okay. Take your time. I can wait, I have all the time in the world.

Oh, no, wait - actually: no, I don't!

Incidentally, all this nonsense cost my housemate £10 in parking fees. The poor woman had been expecting to drop me off, go to work, then come back and take me home later. Nobody told her she'd be there all day! I am very glad that she stayed, especially until after the op, as she was able to put up the fight that I, by that time, couldn't, but still: it's hardly fair on her, is it? You know she had to take that day as unpaid leave? So it actually cost her a day's salary, as well as the parking fee. Which, for the record, is exorbitant.

PS: I kind of fancy your anaesthetist, btw. Is that weird?

Anonymous
  • You need to rattle a few cages. Have you thought of putting your case to Patient Liaison? Every  hospital has a PALS office and they will investigate complaints.

    Meantime, keep going with your sense of humour!

    KateG

  • FormerMember
    FormerMember

    Unfortunately, our hospitals are fit to burst and the medics are trying to juggle too many things at once - hence we become just a number on a piece of paper.  The last thing we need is incompetence and lack of courtesy.  Don't just sit around and wait for them though - if they say in a weeks time, keep them to it and, unfortunately, you will have to chase them up.  It might be an idea to ask if there is one particular person to liaise with, then you wont have to be passed from pillar to post trying to find your answers.  Good luck Hilary, I hope your care plan starts to work properly very soon.  Ann x

  • FormerMember
    FormerMember

    Hi Hillary,

    As Kate says, it Arse kicking time. Excuse the language.

    Look after yourself and Good Luck with the stictches.

    Take care and be safe Big Hugs Love Sarsfield.xx

  • FormerMember
    FormerMember

    I am actually wincing at the thought of belly button stitches. Wincing I tell you. I'd get onto PALS at the hospital, I did that when my dad's results took an eternity to arrive, rang the PALS office and in my best 'snotty cow' voice informed the very pleasant lady that I wasn't happy. Lo and behold the lung cancer nurse specialist rang me that day with an update. Rattle some cages!

    Tummy button stitches. Wince.

    Love Vikki x

  • FormerMember
    FormerMember

    Thank you, everyone!

    The worst bit about tummy button stitches is that the end of the stitches poke you. Ow.

    There may need to be cage-rattling. My next appointment isn't for nearly three weeks, and I'm quite sure the hospital has forgotten all about my pleural effusion. But, good lord, is there anything you feel less like doing, when you're tired and sick and generally pooey, than chasing people all over the place and trying to make them do their jobs?!