Hi anyone out there with a slow growing grade two oligodendroglioma ?
FormerMember
Hi there,
I haven't got a slow growing grade 2 oligodendro glioma... I have a fast growing grade 3 oligodendo glioma... I have known since September last year... what a stupid birthday present!!!
Like you, I've recently had surgery for a brain tumour. Don't know what kind of beast it is yet - still awaiting pathology. Sight okay so far, but other effects which make life more difficult than it was. As they think mine is probably malignant, they're talking about radiotherapy, but I'm reserving judgement on that at the moment.
Big ordeal for me was having the surgery initially, now, as they say, "what next" ?
I'm sorry I can't be more help, but e-mail or pm if talking about it would be of any use to you.
Hi Diane, I monitored a low grade oligodendroglioma for 6 years while I was symptom free (found it accidentally when scanning for something else) unfortunately it started to cause me problems at the beginning of the year.
