Debs Daily Deliberations 256

3 minute read time.

I have just come in to let off a lil steam before my head explodes and if that happened I would probably be on the news as a suicide bomber as I have several bolts holding my bonce together and they could do some damage if expelled at high velocity!!!!!!

Queens hospital operate a system whereby when I see my oncologist I then go straight to the check-in desk (no nothing like the airport ones - no smiley faces for a start ) and make my next appointment before I leave.  They then try to arrange for my MRI to be fitted in just before my next appointment.  This works fairly well, except I usually have a 2 or more week wait for results, which KILLS ME!

In August I had a 15 day wait, which was pretty stressful, on top of the burst vein I was given during the contrast being pumped in through my hand......so my nurse suggests I don't book the appointment with my onc, just wait for the MRI appointment to come through & then ring her & she will try to get an appointment a little sooner.  Sounds good eh.

Well I have my MRI appointment for Monday 7th February at 9am - already stressing badly this time as not only is it 2 years post surgery and I am heading towards what they think should be my expiry date, but I've been having some pains behind my right eye.....not headaches and nothing like the symptoms I had before my brain surgery but little niggly 'aches'.  Could be making a mountain out of a  molehill but you know how the mind works.

I digress, I had left myself notes everywhere reminding me to call my nurse & get this appointment with my onc booked.  Ring up, my nurse is at Uni all day, but a lovely lady in the same office offered to ring my oncs secretary and book it.  She took my home number & I explained that I was going shopping with my disabled sister, so would be some time.......no worries, they will leave a message on my answer phone.  Get home, no message so now have to try and remember to phone oncs secretary & see if its done.

My onc is lovely, terrible time-keeping but lovely, the same can not be said of her secretary however.  Firstly she tells me, "I've already sent you a letter.  I tried to call but you weren't in" (almost like how dare you be out!), I explained that I had already told the other lady I probably would be and she assured me its not a problem as you'd leave a message, I am only ringing because there was no such message.  "We aren't allowed to do that! Anyone could hear your business!"....and I am thinking, well sheesh, not like my family don't know about a little brain surgery, rt & chemo is it..........afterall, its so easy to hide Confused !

Anyway, my next oncology appointment is February 18th........oh I said disappointed.  "I think I might just do it the usual way next time, as it doesn't make much difference" meaning, its only 4 days quicker than the routine way.  "Oh, alright then" she snaps and put the phone down.

Now instead of being angry at her attitude, I am sat here worrying that I said something wrong to upset her.......I know I am super-sensitive at the moment, ask my hubby, he's either getting in the neck over silly things or I am bursting into tears........over the tiniest things.  I know I get stressed every time.....but this time its just worse for some reason.

Right, I feel a bit better........got it off my chest............now I need to do my daily exercise and walk to Tesco's and spend some money!


this little fella has just started to visit us in the last week or two, he comes every day now!


Thought for today:
Stress is nothing more than a socially acceptable form of mental illness. 
Richard Carlson

Anonymous
  • FormerMember
    FormerMember

    Debs

    All these things are sent to try us!!

    I hate waiting for appointments & results & usually end up chasing for dates, having experienced previously the "Oh we sent your details in the post, have you not received them".

    I had a recent jobsworth at my local hospital, an 8:30 appointment (i like to be there early), but they wouldn't open the doors till then & i was desperately jiggling around outside the glass door in full view of staff who chose to ignore me :(

    I needed the loo desperately & cannot wait, when i gotta go i've gotta go :)

    Good luck with your appointment for 7th, hope it goes well, i'll have all my fingers crossed.  

    Hope you destress in Tescos.

    I'm just working myself up for a Colonoscopy on 28th, i've had plenty before but it's the horrid s**t i have to start taking tomorrow evening to "clear me out" that gets me & i've had to stop my immodium today, so i'm staying near the loo already :(

    Somehow i've gotta make the 45 minute drive to the hospital without the comfort of a loo in the car!!

    I also have a white cell scan date come through for 16th Feb this morning which involves all day at the hospital.

  • FormerMember
    FormerMember

    thanks folks, I have calmed down now and think well sod her if she can't understand that sometimes patients might say the wrong thing or misunderstand us, that's her problem - not mine!!!!

    Jewels, the squirrel so far only goes to the peanut feeder and where he/she drops quite a few all the smaller birds come along and clear up!  He's not bothered with my bird table - YET

    Oh and Drew I will try better next time to entertain them.....and as far exploding heads being so last year.....Russian Airports LOL  

    Talking of airports, we actually had a bit of excitement here yesterday, Tony said when he was at work they heard a really loud roar and went outside there was a big old jumbo being escorted by a fighter jet coming over low to land at Stansted, they couldn't find anything on Sky News/BBC using their phones but I heard this morning it had been diverted from Heathrow due to a bomb threat (hoax thankfully).

    Not sure I like living this close to the airport designed to handle such threats!!!!!!!!!!!  I won't have to worry about my exploding head.......I could just be flattened LOL

    Teakbank, good luck with your colonoscopy & scans too.

    Love & Strength, Debs xx

  • FormerMember
    FormerMember

    Hi Debs,

    Glad to see you back albiet under frustrating circumstances.Hope all goes well on the 7th.

    Hope the family are all keeping well and of course Jewels. You look after yourself.

    Take care and be safe Big Hugs Love Jackie.xx

  • Oh Debs, the way to handle snotty secretaries is to lay a big guilt trip on them! Speak very sweetly and tell them your life story, explaining the 'nasty' in your head is doing somersaults with your memory, possibly disolve into a few sobs, and she'll feel like the real cow she is being.

    I really think you should get a retainer from Tesco for all the publicity you do for them!

    Cyber hugs,

    KateG

  • FormerMember
    FormerMember

    I dont think anyone without cancer can ever appreciate how it feels during scan/results time as if they did you would never be made to wait that long for results. I am very much like you in that I find this time extremely difficult and get very snappy or over sensitive. Dont apologise for her rudeness, you feel how you do because you are anxious and thats fine.  I have my oncology appointment for Valentines day, can you believe it?? Although my CT appointment hasnt come through yet. I phoned mt CNS to see if it was worth chasing up but he didnt think they would have made me an appointment yet as its still a couple of weeks away. Well I am going to Disneyland on the 7th so if it comes for then I will have to rearrange it all and I am sure I will get a snotty cow on the phone when I try and sort it out. As someone else said I think it is a pre-requisite of being a receptionist or secretary lol. Good luck Debs and I am sure everything will be ok...you are not going to expire yet ;-) xxx