I've been kidnapped by cancer!

2 minute read time.

How naive of me to think I would be able to keep a written record of this awful journey. When did I think I would find the time? Do I want to remember this grim and troubling time? Only heaven knows - I am way too busy living in this moment.

Strangely enough cancer itself hasn't been the main focus over the past weeks, it was always about "getting through"  THE treatment. Six long weeks already added onto three months of hospital visits and tests and appointments and worry and anxiety and nerve shattering news and here we are. It was like being kidnapped - the outside world was far and distant and not really relevant. It was about survival and about us as a married couple. Nothing else mattered. I had no reserves in the tank for anyone else - I can't help feeling ashamed of that. I've read posts on this forum and in my head I offered words of comfort but it was all too draining to write it down. I never thought I would be like that - I pride myself on the caring and thought I give my own people and others. I'm hoping it has gone unnoticed but tough luck if it hasn't !! Perhaps it will never come back - that's in the future though which is another place entirely.

So we've reached the end of OUR treatment. Every single day Monday Tuesday Wednesday Thursday Friday - for six whole weeks. Driving for one hour and five mins there ...................................and one hour five mins back.  Fifty miles round trip, through country lanes and two large towns. Traffic jams, holdups, car accidents, wind, rain, floods, roadworks, . It's done. Finished. I have absolutely no idea how I managed it. What with hubby being sick towards the end so much, thank goodness for our little silver bucket. It's unbelievable how a little bit of plastic can be such a life saver. (Although the day I forgot to put the handbrake on the car and it rolled away whilst I was emptying hubbys sick into a hedge was not necessarily a life saving moment!) He even slept through that too - bless him.

Yes the sleep - now that's something else. How can anyone who sleeps around 20 hours a day need so much attention? I haven't worked that one out yet.

Anyway, I'm tired again - that will have to keep this for another day.

Yes I'm still being held hostage ;-(

Anonymous
  • FormerMember
    FormerMember

    Hi summerleaze.  Enjoy that first morning when you don't have to get up for the hospital, it's a wonderful feeling.  I know what you mean about not being able to keep a record, there are just not enough hours in the day during treatment.  Try to get some rest if you can, you must be exhausted.  Kidnapped is a very good description!  x

  • FormerMember
    FormerMember
    Hi This just about sums up my last 12 months, we to have just finished treatment, no more 90 mile round trip for us, just the odd scan once a month, I hope you can keep the kidnapper away.. :)
  • FormerMember
    FormerMember

    You don't need to make a daily record. Some days are much the same as the day before and therefore have little significnce. I felt like my life had also been hijacked by Laing's cancer. Until you go through this as a carer (I cannot and would not presume to speak on behalf of any patient) you will never ever know how much your life too is shaken up. How my father coped three times with my mother's cancers I will never know, but cope he did, and as have and as will many other carers.

    I also agree with your statement "OUR treatment".

    You're doing a great job being there for your husband. That's where your primary focus needs to be. There are plenty of people in Macmillan land who are on your side, silently willing you on.

  • FormerMember
    FormerMember

    Reading your blog brings back so many memories. I believe the stress and worry of the situation is just as responsible for the overwhelming tiredness as much as the lack of sleep and the physical caring. Some days I do very little but remain exhausted.

    I agree with the not responding to other people or finding time for them. Sometimes it's too much to have to think about.

    I used to dismiss that awful saying 'one day at a time' but in fact it is so relevant. Some days I can't even imagine a future more than one day ahead because I have absolutely no idea what it has in store for us.

    I think of you often and pray for a good outcome and recovery.

    Zute xx