All the "other stuff" that comes with a cancer diagnosis....

2 minute read time.

I was diagnosed in October 2023 with breast cancer.  I was in the UK at the time.  I moved back home - South Africa - so I could have family around to help and support me.  Since then, January 2024 I had a lumpectomy and axilla dissection (8 lymph nodes removed and 2 were malignant).  About 3 weeks later they found more cancer in my breast, and within 3 days I had a double mastectomy.  Then chemo started and the hair loss began, the extreme fatigue, the swollen belly.

And all the other stuff that hits us when we diagnosed with cancer, is something we never prepared for.  Or at least, I wasn't prepared for.

1) My Family - I want to spare them the ugliness, the pain and fear I am going through (because I love them), but the more I try and hide it, the more it eats away at my insides and the more I suffer!!   This is definitely not their fault.  I know they want to help me.  I know they adore me and will do anything for me.  But they cannot possibly understand what is happening mentally and emotionally and physically to me.

2) My Body - I go from reasonably looking to ugly overnight.  So hard to look in the mirror.  Hate going out and having to find headgear that doesn't make me look like a walking cancer patient.  The fatigue is beyond words.  From walking 6 - 10 kms per day, now I can barely walk from the sitting room to the bedroom.  Will I ever be normal again?

3) My Finances - I had to quit my job as a Carer in the UK. I have no savings and no assets.  I feel like the worst financial burden on my precious family and I hate it!  I really, really hate it.  So, I looked for something I could do online.  Something I could do from the comfort of my sister's home.  Something where all I needed was a smartphone/laptop and WiFi.  And I discovered a digital e-learning proven program where I am learning new skills and will be earning.  It does take at least 2 - 3 hours per day, but I can space these hours out over the day when I feel well enough.  I am not sure if I am allowed to share this with you here but I will put a link and Macmillan can delete it if it is not allowed.  I just thought I would help others because I am sure there are other cancer sufferers that are currently unable to go out to work but could do something online.  www.digital-flexibility.com  or go to https://digital-flexbility.com/ready and view the 4 products.

4) My Future - do I have a future?  And if so, how long?  Of course, no-one knows - not even those who do not have cancer!!  So perhaps that is one of those things I should not be concerned about.  However, I assure you, that if I am well by 2026, I will be hiring a camper van and travelling through Europe, starting in Portugal, for the whole of the Summer.

I am sure for many of you reading this, there will be other "other stuff".  This is my personal stuff.  I am glad I can share.  Putting my thoughts and feelings and fears and dreams on paper, helps tremendously.

Always remember - to those that are well and reading this - your health is your wealth!!!

Anonymous
  • Hello, I got my cancer diagnosis at the end of June last year. And it's been a tough year, mostly. 

    I don't think anyone is prepared for how life changes when we get this ill. And, I guess, we all react differently? And our physical experience of cancer will be unique to each of us.

    The fatigue! I could not believe this, completely different league to anything that I have experienced before. I am not being treated at the moment and this is so much better; so, yes, you may well get back to walking distances again. 

    I am not offering advice, but I will share a small amount of my experience. And that is how amazingly well I have been supported by my family and friends. I have been really open with them about how ill I am. And with some of them, I have shared my fears and sadness. If you can't share with those close to you, is there some counseling support that you can get? And there maybe some help available through Macmillan? There are forums for different types of cancer, perhaps these are worth a look?

    I have never felt alone, I hope that you can find some support that works for you.

    And I 100% agree with you that putting things down on paper helps. Writing down my experience has been more helpful than I ever realised possible.

    I wish you all the luck possible.

  • Hi, thank you so much for your response.  I know each one of our journeys are different but we also still have a common illness.  My family is extremely supportive and my sister or daughter goes with to each chemo session.  My daughter was with me during both my operations.  It is me that doesn't want to burden them too much so I hold back my inner fears.  However, sometimes they do surface and I get a lot of love.  In fact, I am wrapped up in love and I am so thankful.  My daughter has recommended I attend a support group because, as she says, "Mom, we don't really understand what you are going through because we don't have cancer, so best to speak to those who know what you going through".  I have a face book page called Boldly Bald and I share the rawness of breast cancer on that page together with photos.   Anyway, thank you for reaching out.  I also wish you well and strength and health.  Hugs,