I feel like we are just treading water now.
I can't make plans for anything more than a couple of weeks ahead, because I don't know if we would be able to carry them out. Our daughter is singing with something for school and we need to buy tickets, do I or don't I get tickets. How quickly will David deteriate.
David thinks we should get a starlift, but I don't know if we would get the use out of it.
Also it could take 3-4 weeks before it gets installed, he dosen't really need it at the moment, but he wants it there ready for when and if he needs it, what if he dosen't get much worser and therefore dosen't need /use it. What if when he deteriotes he takes to his bed and dosen't want/ is unable to come down stairs.
I wish someone could say an approximate date, just like when you are pregnant and they tell you the date you are due - mind you all 3 of mine were 2 weeks late. At least we would have an idea and something to work towards.
I wish I knew what was around the corner, what to expect, how quickly David will deteriote and what signs to look for.
I hate not knowing, and that it's not until you have been through it that you find out what to expect.
I feel like David is the only person to have this type of cancer / senario, yet I know that others must have been through this, others must have had secondary brain cancer after recovering from the primary cancer. Surely we are not alone, someone must be able to say "David will appear fine and one day won't wake up" or "David will appear fine, but one day will wake with his headache returning and about a week (or whatever) will be gone".
I want to know so I know what to expect, is that so wrong? It certainly would appear so when talking to doctors/consultants etc.
Did anyone else with a terminal brain tumour purchase / hire a stairlift or wish they had but left it to late?
