I don't know whether to laugh or cry Part 2

3 minute read time.

 

New readers start here.

 

 My husband, (Leading Man) was diagnosed with Mesothelioma in September 2008.  The prognosis was six months to live, or possibly nine with treatment. When UK medicine had given him what limited treatment was available on the NHS, he turned to Professor Vogel of Frankfurt University for help.  The Professor has achieved a much higher survival rate for lung and liver cancer patients by administering chemotherapy directly to tumours, via a line inserted into the groin.  The professor accepted Leading man (LM) as a patient. LM accompanied by wife (Leading Lady) made five trips to Frankfurt for treatment, and is currently in remission. 

 

From the first, UK medics were sceptical in the extreme, even when LM referred them to the Prof’s published results.  As time went on, and LM continued to thrive, the scepticism increased.

 

At LM’s three-month check up last week, the consultant’s new registrar was at a loss when he saw LM. He had only read the diagnosis page of Elm’s records, so was obviously stunned to see such a healthy specimen before him. He asked how LM was feeling, and when his chemo finished. LM replied November last year. The registrar was perplexed, so LM patiently explained about his treatments in Germany. The light dawned. Registrar confirmed LM is looking well, and suggests a follow up in three months. Then, LM asks if CT and MRI scans can be ordered so copies could be sent to Professor Vogel in Germany. Registrar had to consult the boss, who while perfectly pleasant has always been highly skeptical of the Prof’s methods. With admirable restraint, Leading Lady (LL) said sweetly it is over a year since LM last had a scan in the UK so is it time for another.  The answer is a resounding no. 

Now read on…..

 

For several days, LM and LL fumed at this travesty of a consultation.  Arrangements are made for a GP referral for private scans; all is again right with their world.

 

Then a copy of the registrar’s letter to LM’s GP arrives.  Hidden in the medical speak is the unmistakable message that this man in one big pain.  How dare he ask for a scan!  The professor’s efforts are dismissed as having dubious benefit. And adding insult to injury,  would LM be good enough to provide copies of the scans already taken in Germany so they can be put on his NHS record?   I leave you dear reader to imagine LM’s response to that request.

Suffice to say, LM will asking that his continuing UK care is transferred elsewhere.

 

 

 

Anonymous
  • FormerMember
    FormerMember

    Daffie - I am Shocked!!!!!! What an attitude! ("If we can't fix it, and someone else did, then we want no part of it")... It's still your tax dollars going into the Health Care System, and so you have a right to any scans necessary. I hope GP is still supportive of LM and is referring him to another Onc.

    Hugs, Mo xxx

  • FormerMember
    FormerMember

    Do you know it amazes me that such idiots can't be pleased for you and don't take an interest in such treatment that has a good effect. I'd have shoved the scan where the sun doesnt shine - sideways in as well !

    Glad that the flights you endured were worth the result though.

    jewels x

  • FormerMember
    FormerMember

    Hello Daffie, this is amazing, about your husband being so well I mean. Shocking about the reaction of the specialist - you would think they would want to learn as much as they can about new treatments. My hubby has been given the same prognosis and starts chemo today. I intend to show him what you have written here and get in touch with the Prof.

    clare x