the story so far....

2 minute read time.

dad got cancer the first time about 7 years ago, it was just a couple of bits on his vocal cords, they scraped and then gave him radiotherapy, and then it was gone.

about 20 months ago they found he had cancer of the esophagus, his throat had been closing up very quickly and he was having trouble eating. annoyingly months before he'd asked his doctor if he could have this, but the doctor just told him no, didnt look, didnt do any tests. if the guy had just given dad a barium test, he would've seen it, and we might not be where we are now.

dad got very skinny, and had to have a tube up his nose to squirt food into his stomach, it was the summer so it upset him even more, not being able to enjoy his usual BBQ's!

they operated, they removed it all, moved his stomach into his chest and now he breaths from a hole in his neck. he had chemo and radiotherapy, which wasnt nice, first time ive seen my dad cry, from the pain of his skin.

but then it was gone, we just had to live with the aftermath. at first he used a cervox to speak, then he got the valve and the gasket thingy and now his voice is good, it almost sounds like him again. its amazing the technology that gives him a voice without a voice box.

i had a baby 4 months ago, his second grandchild, the first was my sisters, she had a little boy, named after him, the day he first went into hospital. i dont think dad would've got through it all if he didnt have that beautiful baby boy to come home to.

3 months ago, they told us it was back, but this time its in his lungs and his neck. they say other than trying to give him more time, theres nothing they can do.

how does a person cope with news like that? it breaks my heart every single day, the day he told us, he looked down at my new daughter, and told her he was sorry that he wouldnt get to see her grow up.

ive always been the person to cope in my family, always strong, but its so hard now, how do you cope when there's no cure. my dad is going to die, and there is nothing i can do about it.

we're hoping that its slow to develop, and there are always new treatments etc... coming out, but its hard to keep hoping and praying and not just crying.

ive always had the answer before, when my siblings were upset and stuff, there was always the next step to concentrate on....but what now.

hes having tests again in december to see how much its grown and whether they can give him chemo yet, and how long he might have.

how do you get through each day, knowing its coming to an end? it breaks my heart, and its hard to be positive. i dont know anyone else who's gone through something like this.

Anonymous
  • FormerMember
    FormerMember

    Hi Missie Green,

    I have the same thing,as your Dad. Only it was my larynx that had the Cancer and 6 lymph Nodes and that was 11 yrs ago. I have spent from March to Aug this year being fed through a Nasal Gastro tube for 6 months. and Im still here, but I cant talk cause the valve leaks.I cant smell or taste.

    I will be going in to hospital soon for what is known as an osophogus stretch so Dont jump the gun to quick and think the worse. After all Im still here.

    Take care and be safe. if you want me as a friend by all means iwill accept if you need any more info

    Just Post me a note and I will get back to you.

    Good Luck and all the best to your Dad.

    Regards Sarsfield.

  • FormerMember
    FormerMember

    Sorry to hear you so upset. You ask how you get through each day knowing what you know. Well 7 years ago my husband was diagnosed with a terminal cancer. He didn't want to tell anyone so for 4 years only we knew. I coped by not thinking about a future without him. I only thought about a future making happy memories. Don't waste your energies thinking about what is going to happy. take each day at a time. Let him see as much of you and your daughter as you can. Don't let your dad see you sad, he will only worry about you. My husband used to worry about not seeing his family any more. He especially didn't want to leave me. It was so painful but I knew that there was time for me to fall apart after he was gone. I did but not for long as I knew he was watching over me and protecting me. Now I have cancer and I know he is with me. i get signs. just little things that mean something to me. For example I was diagnosed with bowel cancer and given the news on my wedding aniversary. At first I was devastated that such a day was desicrated. When I thought about it I realised that it was a good day because although it was a special day and I was given bad news it was actually bad but good. Yes I had cancer but they had  got it all and I was clear, So my hubby was telling me that all was going to be OK. So try to be your usual strong self and you will get through this. You will always have your dad with you. Lots of love Julie XXXX

  • FormerMember
    FormerMember

    I am not sure how any of us cope but we do, taking each day as it comes.

    Treasure the "now" and try not to think too far ahead.  Above all, be gentle on yourself.

    Love & Strength

    Debs xx