On Tuesday night, my partner had an allergic reaction to the platelet transfusion. His temperature skyrocketed and his oxygen levels plummetted, it was very frightening for him. The staff were terrific and managed to stabilise him. He has been put on morphine and arfron (?) since then as the bone pain has got worse. Felt very scared about this, the docs kept saying it could just be a side effect of the GCFS but today we found out that the Leukaemia is back with a vengeance. I kept hoping that our Consultant might have a last card to play but it is a sort of Armageddon option. Today we found out that if he didn't continue with some sort of treatment, he would have a week to live. There is one last chemotherapy to try which will last 6 days. It is a very strong treatment normally used for ALL in children. We have always said that he got ALL, more common tragically in children, because he is a big kid. His consultant has had to pull a lot of strings to get this approved and we are both grateful from the bottom of our hearts that he has made this happen.
I just want to say that my partner is such a fighter, such a brave guy, please be thinking of him over the next 6 days, if only he could get into remission we could go for a stemcell transplant. Our donor is desperate to help. I daren't imagine right now what this strong treatment will entail, he's just come through high intensity chemo and it took about 3 weeks for his counts to start to rise a bit, despite all the GCSF.
I think my blog must be one of the most depressing reads ever, don't blame people for not wanting to read it but in a weird way, it is helpful to get this out of my system.
