Who do I ask? - How to find Trusted Cancer Information

3 minute read time.
Who do I ask? - How to find Trusted Cancer Information

Where to Get Trusted Cancer Information

When you or a loved one is diagnosed with cancer, finding accurate and reliable information is crucial. With so many sources available, it's easy to feel overwhelmed and potentially come across misleading information. Here on the Community, we want to help you find trustworthy information that may guide you through your time of need.

Getting accurate information about cancer can help you make informed decisions about your treatment and care. It can also provide reassurance and may help you feel more in control. But with the internet filled with so much information, how do you know what you can trust?

Look for the Trusted Information Creator Tick

One way to ensure that you're getting reliable information is to look for the Trusted Information Creator tick. This tick is awarded by the Patient Information Forum (PIF), a membership organisation that works to improve the quality of health information. When you see this tick, you can be confident that the information meets high standards for accuracy and reliability.

Many reputable organisations are members of the Patient Information Forum (PIF) and proudly display the Trusted Information Creator tick. Here are a few you can rely on:

  • Macmillan Cancer Support: As proud members of PIF, we pride ourselves providing you with a wealth of information, from understanding your diagnosis to coping with side effects and finding emotional support.
  • NHS: The NHS website is a comprehensive resource for all things health-related, including detailed information about cancer types, treatments, and support options.
  • Cancer Research UK: This charity provides up-to-date research and information about cancer prevention, diagnosis, and treatment.

Why It Matters

Using information from trusted sources ensures that you're getting the best possible advice. It can help you understand your condition, consider your treatment options, and know what to expect. This can reduce anxiety and help you feel more prepared to face the challenges ahead.

How to Check for Reliable Information

Here are some tips to help you find and recognize trusted cancer information:

  • Check the Author: Look for information provided by healthcare professionals or reputable organisations.
  • Look for the Date: Make sure the information is up to date. Medical guidelines and treatments can change, so recent information is crucial.
  • Identify the Source: Use websites from recognized organisations, such as those with the Trusted Information Creator tick from PIF.
  • Cross-Reference: Verify the information by checking multiple trusted sources. If they all say the same thing, it’s likely accurate.

If you're looking for reliable cancer information, start by visiting websites from organisations that are members of the Patient Information Forum. Look for the Trusted Information Creator tick as your sign of quality.

On the Community, we’re here to try our best to help. Our website has a wide range of information, and our Support Line is available if you need to talk. Remember, you are always welcome to get in touch. With trusted information, support, and care, we can help you navigate this journey.

You are always welcome to use the Community and ask about member’s experiences, however just as a reminder, we would always suggest getting in touch with your GP or medical team first as they are able to provide you with the most relevant medical information relating to your case. Although it can sometimes be difficult to obtain an appointment quickly, having your medical decision influenced by incorrect information is often more harmful than experiencing an inconvenient wait.

On the Community, we have our Ask a Nurse section available. Here, you can ask our team of Nurses certain questions you may have around diagnosis, medication, and treatment. They aim to provide a general overview and aim to respond within 1-3 working days on the site. You are welcome to post on this forum if you feel comfortable doing so. The responses our Nurses provide should not be used to override any information you may receive from your GP or medical team. Please note, we DO NOT have access to any medical records at Macmillan.

If you have any questions or need further support, don't hesitate to reach out to us. You can contact our support line, chat with us online, or join our online community to connect with others who understand what you're going through.

Stay informed, stay supported, and remember – you are not alone.

Please feel free to have a look at these handy resources:

Anonymous