Toxic positivity and cancer: why listening matters

3 minute read time.
Toxic positivity and cancer: why listening matters

Positivity can be helpful when dealing with cancer. Hope, encouragement, and support can make a real difference during difficult times. But when positivity dismisses or overlooks someone's genuine feelings, it can become unhelpful. This is often what people mean when they talk about toxic positivity.

Three years ago, we published our first blog on toxic positivity. The topic sparked a lot of discussion as many members related to the concept.

In this blog, we share members' experiences of toxic positivity and helpful resources for talking about cancer.

What Community members have shared

Positive comments often come from a place of care, but they can sometimes make it harder for people to express how they are really feeling.

“When somebody tells me to stay positive and that I’ll beat this, it makes it all the more difficult to ask for help without feeling ashamed about not coping well. It’s this that makes me withdraw or pretend that all is fine!”
Online Community member, Breast cancer forum

For some members, hearing well-meaning advice too often can make them stop talking about their cancer altogether.

“I have one person in my life who I can talk to. That's enough for me. Otherwise I don't discuss my health with anyone any more. The good advice was too hard to handle.”
Online Community member, Toxic positivity and cancer

Some members have said that finding the Online Community gave them a place where they finally felt understood.

“The main driver for me to join the Macmillan community, if for exactly this very reason. Talk about timely. The overly positive egging along from my friends really does not help me at all”
Online Community member, Toxic positivity part two

Sometimes, people don't need advice or reassurance. They simply want someone to sit with them and acknowledge how difficult things are.

“Hi All, I’ve just come across this post and I feel it…. I’d love someone to just put an arm round me and let me have a good cry on their shoulder, without any platitudes.”
Online Community member - emotional support forum

For many people, the most helpful response isn't trying to find the right words. It's listening, showing empathy, and simply being there.

Share your experience

Have you experienced toxic positivity while living with or supporting someone with cancer?

If so, how did it affect you, and how did you respond? We'd love to hear about your experiences. Feel free to leave a comment below this blog.

Talking about your cancer

It can be difficult to talk to others about a cancer diagnosis or cancer treatment. People may react in different ways, and many have little experience of supporting someone with cancer.

If you're looking for guidance on these conversations, the following resources may help:

Talking to someone who has cancer

If you're supporting someone with cancer, it can be hard to know what to say. Often, listening is more important than finding the perfect words. Here are a few things you might want to keep in mind:

  • Pay attention to what the person is saying. Try to listen instead of thinking about what you are going to say next.
  • Do not feel you have to talk about the cancer. Let your partner, family member, or friend talk when they are ready.
  • It may not be helpful to tell the person about other people's stories. Cancer is different for everyone.
  • Try not to say that everything will be fine or encourage them to be positive. It is often more helpful to let people speak honestly about their feelings.

Follow the link below for more information and practical tips:

Further reading

If you would like to read our other blogs about toxic positivity, please click the links below:

Madiso
  • I hate it when people say to me how brave and positive I am when all I want them to do is give me a hug. I’m not brave I’m just trying to do my best to get through each treatment by taking each day at a time.

  • It also doesn’t help that many people don’t understand what secondary cancer is. People tell me “you have beaten it once you will beat it again” or don’t understand how someone with stage 4 cancer is not lying on a hospital bed, bald, frail and attached to a drip. It’s almost as if they don’t believe me because I look well. Somehow progression becomes our fault for not being positive enough. 

  • This has been the hardest thing for me to deal with after my diagnosis.

    I didn't want to hear how other people had recovered, as pleased as I am for other people to have recovered, this is my journey and I just wanted to scream and shout this is not okay, I am not okay.

    For all the help groups, all were people who had recovered, I wanted to talk to those that are going through it now...to have someone like me at the end of the phone to say how are coping today, for only those in the midst of their journeys can really truly support one another. I would sign up to a  chat line of suffers just to be able say I am having a crap day, are you okay?

    My operation is on Tuesday and i am laying awake in fear with no one to talk too, i am broken. Cry

  • Hi  

    Thank you so much for sharing this with us. here.

    I'm so sorry to hear about your diagnosis and that were laying awake feeling so frightened ahead of your operation. It sounds like you're carrying a huge amount right now, and I'm really glad you felt able to be so open here. 

    You've highlighted something that many people affected by cancer will relate to. Sometimes, what people need most isn't to hear that everything will be okay, but simply to be heard and to have someone acknowledge how difficult things feel right now.

    It's important to remember that it is okay not to be okay.

    I can see that you posted in the Breast cancer forum recently. I hope you have found it helpful connecting with other members of the Community there. 

    You might also want to look into the Macmillan Buddies service. Macmillan Buddies is a free support service for people living with cancer. Our amazing volunteer buddies are trained to listen and offer support. They offer a confidential, safe space for you to talk with the same volunteer over 8 weekly telephone calls.

    You can find more information here - Macmillan Buddies.

    I hope the surgery goes well today. Please feel free to let us know how things are going and how you're feeling. 

    Take care,
    Dylan

  • Dear Dylan,

    I am out of surgery, but in a lot of pain.  I think the reason we struggle with the positive messages, partly is because it's still inside you still growing and at this stage thats why it's hard to  be positive. 

    I am lucky, they think mine has been caught early and it's now out, which I know will help me deal with this, but I know I am still fighting an uphill battle, the realisation I'm diagnosed with cancer and that in itself is a frightening reality to deal with. 

    I wish only the best and my prayers for all those also still going through this journey and give thanks to all those those are supporting us, whether survivors or the wonderful NHS staff .

    Mant thanks for being there.

    Sarah x