When good intentions hurt: Exploring Toxic positivity and conversations about cancer

5 minute read time.
When good intentions hurt: Exploring Toxic positivity and conversations about cancer

While positive affirmations can be uplifting, is it possible to have too much of a good thing? Is ‘always positive’ always helpful? In this blog, we’ll be exploring a concept known as ‘toxic positivity’, and how it affects those facing cancer. We'll also offer guidance on how to engage in conversations about cancer.

What is toxic positivity?

When talking about difficult or upsetting emotions, a natural reaction might be to try and counter those feelings with overly positive responses. Although the intention is to provide comfort, positivity can become toxic when it dismisses valid struggles and negative emotions. Emotions are complex, so we need to embrace the full spectrum of feelings, both positive and negative feelings.

Toxic positivity can be emotionally draining. The pressure to have a positive attitude all the time, can lead to feelings of guilt, shame, and isolation when negative emotions arise. We encourage members to express their emotions authentically and offer support without judgement.

Experiences of toxic positivity

Just over a month ago, a Community member wrote about their experience dealing with toxic positivity. Their partner had recently been diagnosed and they had just started telling loved ones.

After sharing their experience, this member asked the forum if anyone else had experienced toxic positivity and what they had done about it.  This allowed for a healthy discussion to take place, allowing members to share openly about their experiences.

“I am getting that at the moment, people telling me, 'But you look so well!’ Or ‘you will get through it as you are such a positive person’”

“I am still experiencing some toxic positivity almost 5 years on from my original diagnosis.”

“I just wish people would think before they speak and realise you have gone through a life-changing experience.”

“Ahead of me starting chemo, a friend passed on the advice of a friend of hers who has been treated for cancer. The advice was that you don’t have to be positive all the time - the drugs will work anyway. I think I’ll be taking that on board”

Click here if you would like to read the full discussion.

Supporting each other through ups and downs

Authenticity and vulnerability are cherished within our Community. By sharing our true feelings and challenges, we cultivate an environment where members can feel heard and understood. Together, we learn that it’s okay to have difficult days and that seeking support during these times is a sign of strength, not weakness. By talking honestly with others, we can improve our mental health and general well-being.

Have you experienced a form of toxic positivity? If so, you may want to pause reading for now and share some of your story with us in the comments below.

Positive thinking

Toxic positivity can be tough to deal with, for both caregivers and those living with cancer. In addressing this, we are not dismissing having a positive mindset, there is a balance that can be found. The key is being real with how you are feeling each day and considering what kind of support you may need.

In reply to the question about toxic positivity, one of our Community champions made some good points and offered the following advice.

“You will find that the ‘positivity’ language will keep coming along so you just have to have selective hearing. But at other times when you know people well and know that you can be open, do try to educate them in a supportive way…

… As for the positive mindset, there is a place for it. My Respiratory Consultant (I also have asbestosis) is a very good family friend and he maintains that of all the patients he sees those who are glass-half-full people do actually add to their ability to get through their treatment and come out the other end in a better place than those who don’t have that mindset - it’s not scientifically proven, just his observation from many years dealing with cancer patients.” 
Community member, Emotional support forum, Toxic positivity thread

Talking to someone who has cancer

How could you reshape your conversations to offer empathy and understanding to those living with cancer? When talking with someone who is navigating the challenges of cancer, it's important to approach the conversation with empathy. Here are a few things you can keep in mind when talking to someone living with cancer:

  • Do not feel you need to have answers. Listening can be enough. Even if it goes quiet for a time, try not to be afraid of the silence or feel you have to fill it.
  • Try to listen instead of thinking about what you are going to say next. When the person with cancer is talking, pay attention to what they are saying.
  • Try not to say that everything will be fine or encourage them to be positive. It can sound as if you are not listening to their worries. It is better to let people speak honestly about their feelings.
  • It may not be helpful to tell the person about other people’s stories. You may have heard about other people’s experiences with cancer. Cancer is different for everyone. They will get the information they need from their healthcare team.
  • Showing empathy is helpful. If they start to cry as they talk, you could say something like, ‘I can see how upsetting that is for you’. If you are close to them, you could simply sit with them and hold their hand.

For more advice and information, you can follow the links below.

Talking about your cancer diagnosis

It can be tricky talking to people about your cancer diagnosis and cancer treatment. How people react when you tell them about the cancer may depend on different things. Many people have no experience talking to or supporting someone with cancer.

Follow the links below for more information and practical tips:

Who can you talk to?

Think about who you usually talk with about important issues or difficult problems. This is probably the best person to talk to. This may be your partner, your closest friend, your eldest child, another family member, a work colleague, a counsellor or a religious leader. It may be somebody who is going through or has been through a similar experience.

Sometimes it is easier to talk with someone you do not know. You may feel less pressure to act a certain way. You may also feel safe knowing that they will not share the conversation with your friends or family.

If you feel this way, you could:

Anonymous
  • So I have just come on here because for several days now I have been feeling pretty low, barely coping with the TKI drug side effects but determined to keep going, just keep going ....

    It is so hard to get across how I am feeling to people,even my OH: for instance the other day I was not feeling good, just drained and useless, but he wanted to go for a walk. I tried, but did not get very far, and I think it really surprised him. 'That is not you!' he said later.  He then was taking about me being 'ill' but I prefer to think of it as that I have an illness  - I am not defined by this cancer, I am so much more than it.  Yet other days he is telling me I am 'doing brilliantly' - compared to what, or who?!

    People do seem to think that you have had an operation, give you maybe a couple of weeks, and then you are 'better' , back to how you were. Not at all the case

  • I'd say my partner is the same after Chemo for 3 or 4 days. I do notice when my partner does brilliantly and tell her. Its all up and down and she's got chemo till January 2023

  • Hi  ,
    Thanks for commenting here. Those are very good questions and it brings up a great point as to why using "competition" language is very unhelpful. 

  • Hi  ,
    Thanks for leaving a few comments here. It sounds like you are a wonderful support to your partner and able to encourage her well when she needs it. We wish her all the best with the rest of chemo. 

  • I am also struggling with the positivity of those around me. It’s probably my own fault for putting a brave face on it, following my diagnosis. I wanted to reassure my friends and family that I am okay, but now I find that every time I try to express any worries or fear, I get shut down. I’m fed up with being told how amazing I am!