Sexual health and cancer: Erectile Dysfunction during and after cancer treatment

7 minute read time.
Sexual health and cancer: Erectile Dysfunction during and after cancer treatment

Dealing with erectile dysfunction (ED) during and after cancer treatment can be a challenging and sensitive topic for many men. In this blog, we’ll delve into the experiences of our Community members. Sharing their valuable insight on how they navigated the emotional and physical aspects of ED. Additionally, we’ll discuss sexual health and intimacy, challenging the notion of a “normal” sex life.

Experiences of Erectile Dysfunction

Here in the online Community, no subject is taboo, and our goal is to have safe spaces where members can chat freely about what they are going through. Recently, members of our Prostate cancer forum shared honestly about their struggles with ED, seeking advice and suggestions from their peers.

Advice from the Online Community

When seeking advice in the Online Community, it’s important to keep in mind that members are asked to share from their own experiences. Everyone is unique in how they respond to surgery and treatment, and we always recommend talking to your GP or medical team as the first port of call.

Other members of the Prostate cancer forum shared what has helped them when dealing with ED after cancer treatment.

Is there such a thing as a “normal” sex life?

The emotional and physical effects of a cancer diagnosis can affect how you and your partner feel about sex. Insecurities about sex, or feeling something is wrong, can have a big impact on how you feel about yourself. It’s important to remember that there’s no one-size-fits-all definition of a “normal” sex life, whether before, during or after treatment.

Numerous ways exist to experience pleasure and nurture intimacy in your relationship. Exploring alternative forms of physical intimacy, such as sensual touching, oral sex or incorporating sex toys, can be immensely pleasurable and fulfilling. A sex therapist may be able to help you cope or find different ways to enjoy sex.

If you’re having trouble with sex after cancer treatment, it’s not always easy to talk about it. In this video, psychosexual nurse specialist, Lorraine Grover, talks about how you can approach the conversation.

A safe place for honest and raw conversations

The online Community serves as a safe and anonymous space where members can openly share their experiences and thoughts. Some members may not have the same experience but are able to provide valuable insights and advice to others. This insightful contribution came from a member who took the time to share some of her thoughts about intimacy and sexuality.

In the bladder cancer forum, one Community member wrote about maintaining intimacy despite physical obstacles.

The online Community is here for you

If you have been struggling during or after your cancer treatment, there are people in the Community who would love to support you. Why not visit the Online Community and post in a forum that is relevant to you?

If you have experienced ED and would like to share your own experiences, please leave us a comment below.

Support, information, and expert advice

If you are worried about ED or other forms of sexual functions, you can talk to your cancer doctor, specialist nurse or healthcare provider before, during or after your treatment. They can give you advice about support or treatments that may help. Try not to let embarrassment stop you from asking for help. Your healthcare team are used to talking about sex. In addition, you can read about treating erection problems here.

If you are battling with your sexual health, sexual desire, or other sexual problems, you may benefit from reading what our experts have written in cancer and your sex life".

Prostate Cancer UK also offers a sexual support service where they can offer information and support about the impact of treatment on a person’s sexual activity.

If you are struggling mentally or emotionally, there is support available for you. Through our partnership with BUPA, Macmillan is offering up to six sessions of free one-on-one counselling to people who have been diagnosed with cancer which can be quickly and easily accessed without any waiting lists. If you would like to explore whether our BUPA counselling service might be right for you, all you need to do is contact our Macmillan Support Line and ask our teams about the service. Our Support Line is available 7 days a week, 8am-8pm on freephone 0808 808 00 00email or live webchat.

Anonymous
  • Has anyone experienced sensitive bladder and burning in urine and has no control over the bladder and its sore what support can as carer provide to alleviate their pain

  • Hi  ,

    Thank you for commenting on this blog. 

    I'm Dylan from the online Community team. Im sorry to read that the person you are caring for is experiencing bladder pain and burning in the urine. We are not clinically trained in this team so I wont be able to give medical advice. However, I will direct you to the most appropriate places to ask your question below. 

    Have you been in touch with a GP about your concerns? We would always recommend contacting a GP, medical team or NHS 111 if you notice anything that concerns you.

    You could also post your question in our Ask a Nurse section. One of our cancer specialist nurses will aim to respond within 1 to 3 working days. Please keep in mind, Macmillan does not have access to any medical records. You should always seek information from your medical team first.

    You can also contact our nurses through the Support Line today. Our support team are available 7 days a week, 8am-8pm on freephone 0808 808 00 00email or live webchat.

    If you would like to ask your question to other people who have been affected by cancer you can post in one of the forums that is most relevant to you.  

    I hope this information is helpful and that the person you are caring for can find some relief soon.

  • I'm not suffering from ED, more a case of erectile non-function. I've tried the little blue pills, a pump, etc. but nothing stirs the little man. No idea what to do from here as the little man is only used for peeing through.

  • I underwent a radical prostatectomy in 2012. I suffered from ED for the next 2+ years. Finally my consultant reluctantly agreed to refer me for an inflatable penile implant.it was the best decision I’ve ever made. I now speak to men who are contemplating this course and feel privileged to be ina position where I can openly discuss my experiences. An implant is often seen and termed as a ‘final’ option. To me it was the ideal solution, giving my my life back, saving my marriage and my sanity, providing the spontaneity I so needed.