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accessing Nephrostomy forum

Hello Fuzzbuzz

Thank you for your comment and I hope we can help you find the right space to ask questions related to a nephrostomy. 

I was sorry to read that your husband is facing a nephrostomy. There don't seem to be many people talking about nephrostomy in the kidney cancer forum, so I have moved your post and joined you to the general stoma forum where you might find some support. 

I will also highlight your post in the bladder cancer forum, where more people seem to have been through a nephrostomy. I'll post a link to your post so if anyone has the experience you're looking for, they might pop over to offer you some support. 

I'd also suggest you join the non hodgkin lymphoma forum which is a really helpful and supportive place, 

You might also want to join our family and friends forum for support. It’s a safe space for anyone supporting a loved one with cancer to share experiences and support one another.

Macmillan has this information about nephrostomy that might be helpful to have a read through. 

If you’d like to talk anything through with someone at Macmillan, I’d encourage you to contact the Support Line for ongoing support. Even if you just want to chat with someone who is there to listen, do give us a call.  Our Support Line teams are available 7 days a week, 8am-8pm on freephone 0808 808 00 00, email or live webchat.

We have some information here to help support you when your loved one has cancer.

The charity Lymphoma Action may also be helpful to contact. They have a real life story here from Ahilan who had a nephrostomy as part of his treatment.

I hope this is helpful, please do get back in touch if you need further help. 

Hi 

I’m recently diagnosed with NETs cancer (nov25)  and just having terrible time sleeping at night I average about 3/4 hours a night and my anxiety is bad. I’ve just had a liver embolisation last week and I’m in recovery. Bit more recovery than I thought.

I’ve kids to get to school and my husband works away midweek. Anyway just wondering how you manage night time insomnia do you just get up and catch up with sleep during the day that’s what time trying to do…so im ready for the kids after school l.

if any other NETS Patients out there would love to hear your stories.

I’ve also just found out after my liver embolisation I’ve to go and see my cardiologist urgently as this cancer can affect the heart and my anxiety is worse as it’s next Tuesday.

anyway thank you in advance hope your all

ok.

• Hi. My name is Christine. I have had a cancer diagnosis and had surgery to remove it. I am trying to get travel insurance. I am wondering if anybody has any reconditioned for companies. 

Hi Cullieo 

I'm sorry to hear that you were diagnosed with NETs cancer in November and that you're struggling with anxiety and sleep following treatment. I am glad you have got in touch, as there is lots of support available for you. 

I have added your question here in the 'Awake and up all night thread' where you will find lots of people facing issues with sleep. We have created this dedicated conversation thread for anyone who wants to chat during the night. 

To meet others with neuroendocrine cancers, we'd encourage you to introduce yourself in the Neuroendocrine cancer forum . The video and written instructions above will help you get started. If you need more help with anything, please do let us know.

Our Community News Blog here shares the experiences of members having sleep problems and links to some information pages, including:

• Macmillan - trouble sleeping
• MIND (UK mental health charity) - sleep and mental health

Macmillan also have some helpful information about cancer and anxiety here.

We know that lots of people find it helpful to be able to connect with others who understand. I hope you get some helpful answers. Please do keep chatting here in the forums.

You can also connect with our Support Line whenever you have questions, need support, or just want to chat with someone who is there to listen. .  Our Support Line teams are available 7 days a week, 8am-8pm on freephone 0808 808 00 00, email or live webchat.