Help us shape the Online Community

I agree with you Granny59. There was a place for jokes on a Friday, set up by Peter RIP, and that was good because you could go in there if and when you wanted. For entertainment, I would not come to macmillan (or Samaritans). We all cope differently and a "cancer" friend of mine lent me a book with jokes about death. Not for me. So having light-hearted content peppered around would totally put me off.

I found the website not the easiest to navigate.  Its not clear where to go to find your posts and your answers.  I find Im afraid to leave the page Im in in case I dont find it again!

Perhaps we could talk about alternative therapies away from the medicines we are prescribed are there any other courses of treatment we could under go with fewer side affects?

From my first experience of having Chemo for Low Grade Non Hodgkinson Lymphoma - I found it hard to know "what to do for the best" once chemo was finished.  For example, some people I spoke with on other forums were asking, could they have spa treatments, go swimming, like before, have their nails done etc., all very valid questions in the scheme of things, as with blood cancers, there is always living with the risk of infections- so my point being I know one glove does not fit all, but instead of being to told check with the CNS nurse team, perhaps they could put together a generic list of what they would suggest "not doing" - as when I looked at the answers most people gave, it was always just ask the CNS.  In my case, I got a bit paranoid about food and what I should avoid, and I am now only just feeling normal about food - I think perhaps a forum whereby people are asking those questions, all in one place perhaps with a clinical input - would help I think?

Hello