Community guidelines update

2 minute read time.

"We've updated our community guidelines" is written over a picture of a cup of herbal tea.

We have some important information to share here on the Online Community. We have decided to review our Community guidelines, and have made some changes.

Our Community guidelines are what everyone agrees to when they join the Online Community. They’re in place to ensure that everyone is safe while using the site.

This decision was made based on guidance internally from teams within Macmillan, alongside feedback. These changes concern members organising meetings on the Online Community, sharing medical images and photographs, alongside clarifying what private messages should be used for. 

These guidelines will be in effect from today. You can read what has changed below, or in our Community guidelines.

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Events, meetings and group chats with other members

We understand that lasting friendships can form on the Online Community. We appreciate that some members may find it helpful to have video calls or organise meetings in person or group chats with friends they have made on the site.

As the Online Community is a public platform, for your safety and online privacy we ask that no meetings, group chats, events or video calls are organised or promoted within the public groups.

Please be aware that Macmillan are not responsible for your safety in any meetings organised with other members of the Online Community. Any personal information you share privately or meetings you attend is at your own risk.

Private messages

We respect that private messages are between you and other members. However, please be aware that private messages are still subject to our Community Guidelines. Private messages may not be used to solicit personal information from other members, harass or intimidate members or in any way coerce another member. Private messages may not be used to promote research, surveys, petitions, products or services to members on the Online Community.

Photographs

Members may post photographs on the Online Community within the below guidelines:

Members may not post pictures of medical images of their body, or medical documents. Members may not post a picture which includes what could be considered a private body part, a rash, wounds from surgery or treatment, or blood. The Community team may use their own discretion to determine what constitutes a medical image. The Online Community is not an appropriate place to seek medical advice or a diagnosis.  If you have any concerns about cancer, please seek medical advice through your GP or healthcare team. 

You may post an image of yourself at your own risk. Members may not post pictures of anyone else on the Online Community for their safety and privacy. This is because we would be unable to verify if someone else had consented to an image of themselves being shared publicly online. Members may not post any pictures which could indicate where they live or work, such as a front door, work uniform, or recognisable feature.

Our members’ online safety and privacy is our priority and we reserve the right to remove any images at our own discretion.

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Here in the Community team we are always here to help, and we are open to feedback on what might work better for you as a member of the site. If you would like to share your thoughts or questions you have about our Community guidelines, please just let us know at community@macmillan.org.uk.

Anonymous
  • Hi

    Thank you for your comment, I'm sorry to hear that you are having problems posting on the Community today.  A member of the Community team will be in touch so that we can take a further look into this for you. 

    If you have any technical problems using the site, do know that you can always email the team directly at community@macmillan.org.uk

    You can also post in our 'Technical support' forum and a member of the team will respond to offer some further information and support. 

    Kindest regards, 

    Rachel
    Macmillan's Community team 

  • Are we now allowed to post links to other support networks, like Facebook. 
      

  • Hello

    I’m Steph and I work in the Community Team here at Macmillan. Although I’m sorry that circumstances have brought you to the Community, I hope you find the site a safe place of kindness and support. 

    I’m sorry to hear about your friend’s diagnosis of lung cancer. I hope we can help support you both through this difficult time.

    We regularly see the benefit of members being able to talk to others in similar circumstances. I’d recommend you join the Community ‘Family & Friends’ group here. It’s a place where anyone supporting a loved one with cancer can talk to one another and get support.

    Our Support Line teams are also here for you both. They’re available 7 days a week, 8am-8pm on freephone 0808 808 00 00, email or live webchat.

    Please do let us know if you have any questions, or need further help using the site. I hope the Community helps to show you that you are not alone and there is lots of support available for you. 

  • Hello

    Thank you for question. As part of our Community guidelines, we ask that members of the Community only signpost to groups or pages run by registered charities with a registered UK charity number.

    If you'd like to share details of a Facebook group, which is well-moderated and safe but not run by a registered charity, please do ask the group owner to get in touch with the Community team (community@macmillan.org.uk). In some circumstances, we may be able to verify the group and allow it to be shared on the Community.

    I hope this answers your question, but if you have further questions or need support, please do get back in touch.