"But what should I say?" Talking to someone who's been diagnosed

6 minute read time.
"But what should I say?" Talking to someone who's been diagnosed

When someone close to you receives a cancer diagnosis, it can sometimes be difficult to know what to say. You want to reassure them, but you don’t want to minimise what they are going through, you may have questions you want to ask, but also don’t want to pry, you want to let them know you’re here for them but also give them any space they may need. It can seem really difficult to know how to start and can lead to some people avoiding the situation all together. When it comes to talking about cancer, there is no one script you can follow because, the simple fact is, ever single person is different and may want to talk about cancer in their own unique way. 

The most important thing is that you are open to having those conversations about cancer, as being open and available to talk can be a really beneficial way to support someone who's just been diagnosed.  It’s also important to remember that you will be dealing with your own emotions and reaction to the situation as well as your loved one, and you are both equally deserving of finding right support to talk about how you are feeling.

In today’s community News Blog, we are exploring how to approach the conversation of cancer with a loved one. As always, our Community members are here to help by sharing their experiences of what they found helpful when talking about cancer.

But what if I say the wrong thing?

It’s understandable to be worried about saying the ‘wrong’ thing when talking about cancer. When someone you love is going through a difficult time, the last thing you want to do is add more upset and stress to their situation. However, this can lead to people avoiding the subject of cancer, or worst avoiding the person who has been diagnosed altogether, out of not knowing what to say. Remember it’s ok to have concerns about what to say and you are not alone.

“I am scared of saying something wrong. I don’t know if I should ask ‘how are you’ is that insensitive? Should I talk about my day/week?” Community member, ‘Carers only’ forum

Jenna, one of our Cancer Information and Support advisors gives the below guidance when talking to a loved one about cancer: 

Often as a loved one it is easy to feel as if you ‘should’ know what to say or do to help or to soothe, but this can be difficult for many reasons, importantly: everyone is different in how they feel, respond, and cope with the news and so there is no set right or wrong way to support.

A key thing though can be being sensitive and empathic to their needs. It can be natural to want to reassure for example, but sometimes this can tip over sometimes into shutting down a conversation on how they may truly be feeling.

Empathising with their feelings whatever they may be, however difficult, can be so supportive in helping someone feel understood and less alone.

There is also nothing wrong with asking them what they feel they need right now.

I want to assure you that it would be almost impossible to get things ‘right’ all of the time, but communicating when you feel you may have said something that feels as if it didn’t come out right, or has not had the impact you intended, can be so valuable. It can feel daunting but shows a sensitivity and desire to help and be there.”
Jenna, a Macmillan information and Support advisor

The importance of listening

When it comes to talking about cancer with someone who has been diagnosed, sometimes one of the most important things we can do is simply be there and listen.

“Sometimes the best gift you can give is to allow people to cry if they need to without trying to stop them or even reassure them it will be ok when it won’t.”  Community member, ‘Carers only forum

“Sometimes it can seem the people we least want to talk to are those we feel close to and finding words of comfort when we too are in shock can be hard. One tip I was given was "if you do not know what to say just listen" Community member,Carers only forum

“Why not just ask, "how are you doing?" and then listen attentively?” Community member, ‘Breast cancer forum

Be honest and ask  

As our Cancer Information Advisor Jenna mentioned, sometimes if feels like we should have all the answers and know what to say when supporting someone with cancer. But in reality, that’s not always the case. Sometimes being honest and open is the best policy - especially when the alternative might be saying nothing at all. Letting people know that you don’t know what to say, or following their lead and simply asking them what they need can be really helpful.

“Be open, ask, avoid assumptions – it’s worst to not say anything at all.” Community member, Breast cancer forum

“What typically bugs me is people with no experience of cancer talking like they know how we feel or what happens. I’d rather they asked than assumed.” Community member, ‘Womb (uterus) cancer forum

“In terms of talking often it is best to follow their lead” Community member, ‘Carers only forum

“I would follow her lead and ask her how you can help and if there’s anything you can do.  Sympathise and be there for her.” Community member, Carers only forum

“I do understand that many people will feel awkward and not know what to say, but to me it would be better to say that they don’t know…it’s not that difficult just to say “that must be difficult for you”.  Community member, ‘Breast cancer forum

Our Community is here for you

If you don’t know how to tackle the topic of cancer, you are not alone. Our Community members are here to support you. Whether your partner, family member, friend, or neighbour has been diagnosed and you need guidance in how to approach the subject of cancer, why not post in our Family and friends forum to connect with others who may have been in a similar situation.

You might also find the below resources useful:

What to say to someone who has cancer
Talking with someone who has cancer
 “I’m fine”: how do you really cope as a carer?
Being a partner and a carer: how cancer can affect relationships

However you approach talking about cancer, remember you are the expert when it comes to your relationship with that person. Trying to make sure you say everything right could lead to you not saying anything at all, and it’s important to let your loved one know that you are open to talking about cancer if they want to. Sometimes just simply asking ‘How are you?’ can make all the difference.

Do you have any tips for talking about cancer with your loved ones? If so, why not share them below to help others who may be concerned about what to say.

Anonymous
  • Hi ,

    Thank you so much for your comment and for sharing your experiences of talking about cancer with us today.

    I’m sorry to hear that some people avoided you when you mentioned cancer out of awkwardness.

    That sounds really difficult, especially at a time where many people already feel isolated. When putting this blog together, myself and the team wanted to help reassure those who are so worried about saying the wrong thing, that they end up avoiding the subject altogether, that taking the time to have open and thoughtful conversations can be really beneficial for everyone.

    Here on the team we know how helpful it can be for members when others share their experiences, so thank you again for taking the time to share yours.

    If you have any questions about the blog, or ever need any support, please don’t hesitate to get back in touch. You can either respond below, or email the team directly at community@macmillan.org.uk.

    Take care,

    Rachel
    Macmillan’s Community team

  • This was helpful as I am a carer. I feel that I am being a bit repetitive asking if he is ok?. But he is being so brave and has had some good news that his bone scan is clear. But its almost like he is now looking forward to having radiotherapy and is blind to the fact it could have a massive impact on him. I don't want to be bring him down but September is going yo very difficult as this is when it starts.

  • Hi Rachel, that's why I'm being very vocal on social media. I don't care what people want to ask me about my journey with cancer. No question is a silly question. Lee

  • Hi Rachel

    This is very useful, but equally useful, in my opinion is what NOT to say! I write quite a lot about cancer and feelings etc and have written about what you could say and what you should avoid, although of course I am writing from my own personal perspective about the things I didn’t like being said to me.

    Listening and empathy (not sympathy) were very important for me. But someone saying “here if you need me” was not useful. For example, a specific offer of help in the form of a lift to treatment or making a meal for the freezer would have been better than putting the onus on me to suggest things I might need. But we are all different so what works for me wouldn’t necessarily work for someone else. 

    I don’t mind being asked how I am, with the proviso that the person asking is prepared to listen to the response and not expect me to say I’m fine all of the time. There’s quite a pressure on cancer patients to say they’re fine to save the feelings of others, but that’s not always helpful to either side.

    Sarah xx

  • Hi

    Thank you so much for commenting on our Community News blog to share your experience today. I'm really glad you found the blog helpful - that's great to hear.  

    Here on the Community team we know that there can be a lot of apprehension when talking about cancer, and we want to reassure members that open, honest conversations can be really beneficial. 

    I also wanted to say that I was sorry to hear about your loved one's diagnosis and everything you are both going through at this time - I hope that you know that our Community, and Macmillan, are here for you both going forwards. 

    You mentioned being concerned about how your loved one will feel when starting radiotherapy and I wondered whether you might find it useful to take a look at our information booklet called 'Understanding Radiotherapy' for some more information today? 

    Do remember if you have any questions, you can post in our 'Ask a nurse' session and one of our Cancer information Nurses will respond to provide some information and support. 

    I hope that the above is helpful Alexandra, and do remember our Community is here for you 24/7. 

    Thank you again for sharing your experience, and if you need any further support, please don't hesitate to reach out to the team at community@macmillan.org.uk 

    Take care, 

    Rachel
    Macmillan's Community team