Myeloma

Hi Colin

Welcome, A Little about me before I start Lol.

I am 54 years young, and was told I have Myeloma in  Jan 09.

I have been taking My course of treatment started on 14th Feb 09, all tablet form chemo (CTD).

Had 5 sessions of the CTD Chemo (a lot of pills) I also had Good and Bad days when i was on those (Finished on the 17th July), But must admit I got used to it, knew when i was gonna be tired, knew when my energy levels were gonna be up so planned everything round those days.

I have now got Dates for my next lot of treatment (i opted for stem cell harvest and transplant)

On the 12th Sept I will be going into My Local Hospital to Have More Chemo (just a W/end job)

then on the 16th Sept I start having daily injection's to help produce more white blood cell's prior to the harvest

Next will be on the 22nd Sept and that will be to have my stem cell's harvested, and will be in Hospital untill they have enough of the stem cell's, then at this moment I dont know when it will will be returned to me?, I will keep you Informed Colin as my treatment moves along.

Wish you all the best and dont forget when tired Relax and take one day at a time, I did.

Oh btw Colin I have been off work since May.

Hello Collin. I have been a member for 1 day and 1 hour.  I am not an expert on my own disease,

but I know you have so many questions and concerns.  I am in my 70's and was diagnosed

April, 2007.  You are smart to find out everything you can.  We all probably have different reactions

to the same occurrances.  I am in my 3rd year, feel pretty good and know that I could work at

something if I wished. I'm on 50 to 100 mgs of Thalomid daily.  This is a light dose, but I do

react to medicines pretty easily.  It seems to work for me so far. I do have symptoms such as sleepiness,  

fatigue, and have had a bout with a rash.  

I drink a lot of water and take "Pedialyte" to keep up my electrolytes.  I use a stationary bike about

10 minutes a day, and eat a lot of raw vegetables and fruits.  With all of this I still don't have the

answer to longevity.  Things will change and I'll have to try something else.  But there is always hope.

If I haven't bored you and if you feel like it, tell  more about yourself and MM.  I am an "old" woman, but

don't feel like it yet. So, I keep going and appreciate the days or years I have and want to share my thoughts.

Incidentally, Geraldine Ferraro, who ran for VP of the USA has had Myeloma for 10 years and she is doing a

good job of managing it.  These people inspire me so that if there is a time when I don't need help anymore,

I can be there for someone else.  

Hang in there, Collin.  

Puywacket  

Hello Colin, 

Hello Colin, 

Apologies Colin, I'll try again

  I was diagnosed in 2014 & had my first stem cell transplant in 2015 

After nearly 5 years remission, Myeloma returned in 2019

I'm booked in for my 2nd stem cell transplant next month 

How far are you along on your journey?

Very best wishes