8th April
Now that Bob has settled down he has fallen into a distinct routine. Unlike me when I used to work shifts he works hardest through the night doubling his output and expecting me to wake so as to make room for more. I don't have much choice since there would be an awful mess to clean up if I roll over. So I'm up 2 or 3 times a night to tend to him. It means that I never get a full nights sleep and the quality of sleep is not so good since I'm waking to check. Just after breakfast he has a snooze so this is when I change and clean him. My peristomal skin which is around Bob was getting pretty sore until Joanne the stoma nurse gave me some 3M Cavilon Barrier Wipes to use. Throughout the rest of the day his output is moderately constant but generally bubbling with flatus just before teatime. As you can see it's a cross between a baby and a Sunday afternoon boozer that lays around farting on the sofa.
I had a steady walk out yesterday thinking I would probably either turn around and run for home at Shireoaks train station or at the maximum make it to the seat beside the canal near the old Steetley Transport Depot. I exceeded both by making it to Turner Wood without much discomfort albeit at a very slow pace. All being well I will try to keep this up on a daily basis.
On another note - I should have been at Plas Y Brenin for a week starting today white water kayaking. The rivers will be flowing fast with all the rain yesterday and today and its set to rain most days for the rest of the week. Ah well we will try again in September or October, hopefully I'll be back to normal.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007