A while back I contacted Breast Cancer Care to see what support they could offer me seeing as my local hospital dont seem to care too much about secondary breast cancer patients. When I got my primary 2 years ago they swamped me with info, phone numbers and my very own breast care nurse, who called now and again/popped in when I had appointments etc. This time I got squat!! After I had surgery to remove a node from my neck (very painful) they gave me a leaflet for a lumpectomy but had crossed out lumpectomy on the front and scrawled excision biopsy in its place!! Anyway they put me down for a telephone support group, something I did previously for younger women with BC. I really enjoyed the last one so again was looking forward to today when the first session was due at 11am
Then I got a phone call at about 10am from the Macmillan unit asking if I was going for my treatment today at 11!! Oh I thought it was tomorrow, well thats what I had put on my calendar anyway!! So after some negotiating I managed to change my treatment app for 12.30 today and still do the support group. Phew, sorted. Silly me!!
So the group was great, I feel that I have aired some things that were bothering me with the other ladies and hopefully we can really help each other over the next 4 weeks. One of the things I told them about was my secret journal I have been keeping. I actually started it when I first noticed the lumps in my neck as I sooo knew what they were going to be. Some days I put some very deep and meaningful stuff in there and other days its just waffle. But it has helped me 'say' some things I need to but also which will be private until I am no longer here. Treatment went fine too, in and out really.
Well thats me for today, I am absolutely freezing but cant afford to have the heating on anymore than necessary. Will have to have a hot cuppa coffee and get the duvet out.
Love to all
Chrissixxx
