Lack of support for second time rounder's

2 minute read time.
Treatment went ok on Monday apart from sitting there all day bored out of my skull it went without a hitch. I have probably said before Herceptin is a breeze, you dont even know you have had treatment really. The one thing I did notice and it annoyed me a bit is despite the fact I was at the unit every 3 weeks(at least)for almost 2 years none of the nurses who know me very well bothered to speak to me!! They put the canula in and started the drip, left me sitting there for 6 hours took the canula out and off I went. Now I'm not saying I deserve any special attention because I dont want to be there any more than they wanted to see me there again...in the nicest possible way. A man came and sat beside me with his wife and the nurse came and sat with him explaining what was going to happen, obviously his first treatment. I know this is a scary time for people and the nurses have lots of info to give but she must have spent a good hour sitting with him going through all the do's and donts, possible side effects and who to call if there is a problem. I didnt get any of that. One nurse came to do my hourly obs and asked if Dr Moody(my onc)was giving me lots of support....I didnt know how to answer. Then I realised I havent been offered any. I wonder if they feel that if you have been there before you must know everything and you obviously dont need them to sit with you for an hour to go over everything, well thats wrong because you do, dont you? I havent been given a breast care nurse this time, they havent contacted me or given me any info or advice like before. Admittedly I do know more about the cancer and treatment than I did when I was first diagnosed but things are a little different this time.....I have incurable secondary cancer that will eventually end my life, surely there should be some kind of support for that?? I just wondered if anyone else had experienced anything similar?? Sorry for the moan but some times I just feel cheated and I still have bloody toothache so I am grumpy. Cant see the dentist til the 9th Sept unless I pay privately...erm no chance. So I will have to dose up and bear it until then. Love to you all Chrissi xxx
Anonymous
  • FormerMember
    FormerMember

    Thanks Christine, am soooooo hungry cant eat today hope i get something nice afterwards LOL probs just the usual NHS sarnie but who cares its food !

    Hope you are well

    Love

    Jill