Treatment went ok on Monday apart from sitting there all day bored out of my skull it went without a hitch. I have probably said before Herceptin is a breeze, you dont even know you have had treatment really. The one thing I did notice and it annoyed me a bit is despite the fact I was at the unit every 3 weeks(at least)for almost 2 years none of the nurses who know me very well bothered to speak to me!! They put the canula in and started the drip, left me sitting there for 6 hours took the canula out and off I went. Now I'm not saying I deserve any special attention because I dont want to be there any more than they wanted to see me there again...in the nicest possible way. A man came and sat beside me with his wife and the nurse came and sat with him explaining what was going to happen, obviously his first treatment. I know this is a scary time for people and the nurses have lots of info to give but she must have spent a good hour sitting with him going through all the do's and donts, possible side effects and who to call if there is a problem. I didnt get any of that. One nurse came to do my hourly obs and asked if Dr Moody(my onc)was giving me lots of support....I didnt know how to answer. Then I realised I havent been offered any. I wonder if they feel that if you have been there before you must know everything and you obviously dont need them to sit with you for an hour to go over everything, well thats wrong because you do, dont you? I havent been given a breast care nurse this time, they havent contacted me or given me any info or advice like before. Admittedly I do know more about the cancer and treatment than I did when I was first diagnosed but things are a little different this time.....I have incurable secondary cancer that will eventually end my life, surely there should be some kind of support for that?? I just wondered if anyone else had experienced anything similar??
Sorry for the moan but some times I just feel cheated and I still have bloody toothache so I am grumpy. Cant see the dentist til the 9th Sept unless I pay privately...erm no chance. So I will have to dose up and bear it until then.
Love to you all
Chrissi xxx
FormerMember
Hi Chrissi
Never spoken to you before but I have followed your posts for a while and it shines through what a lovely person you are. I think you are dealing with this so well - you are such an inspiration to all the people out there suffering with this terrible illness. You are entitled to as much support this time round as before, in fact if anything perhaps more. Don't be afraid to ask for it
I feel for you with toothache - I tihnk its one of the worst pains around. When I have had it only Nurofen ever seemed to touch it? Think you should phone up your dentist and tell them what pain you are in. Do they know you are ill too? Tell them that its just toomuch to cope with right now, they will fit you in.
Hi Chrissi, I agree with you totally, people with return of this disease do need support, perhaps even more so. I know the obvious answer would be to ask for help, but I can understand you would feel, 'why should I, the help should be offered'. Most people don't like to ask for help. Can't understand they haven't even given you a breast care nurse.
So sorry you're suffering the dreaded toothache, hope you get some relief soon. Love, Christine xx
Hi Chrissi thats bloody terrible i would definitely put a complaint in, it shouldnt matter if its your first or 51st time there, i realise the nurses are busy but to have someone sat next to you and get info and not you thats not on!!!!!
You seem like a feisty lady like me so go for it girl LOL, complain and you could be saving the next patient who gets this sort of treatment ?????
Sorry to hear about ya tooth still there nothing worse than toothache (apart from the obvious) is there?????
Im goin into hospital today overnight to have this PEG fitted in my stomach god thats bothering me more than the treatment next week, only cos i cant be put out fully only having sedation, i dont do pain LOL im fine if i cant feel anything!!!!
So i l come home tomorro with a tube (only a thin one) protruding out my tummy, great eh??? Will have to look in my wardrobe for my loose fitting clothes LOL thats gonna be bad cos when you wear baggy clothes you eat for england well i do anyway! But hence the PEG they reckon i wont be able to eat normally for a while once the treatment kicks in so might be in those size 8 jeans sometime LOL
