7 weeks with no treatment and CT results tomorrow

2 minute read time.

So following on from my last blog which was quite a while ago I havent had any treatment at all.  So to say I am worried about my scan results is a bit of an understatement to say the least.  I had an appointment with a locum oncologist a while back about the pain and lump in my breast and also the heart symptoms I had been experiencing.  He basically said what I was feeling in my breast was my ribs and that cancer doesnt grow in 2 months, which is how long it had been since my previous CT.  Ok I thought so why do I have scans every 3 months then? Then he asked me if I drink and smoke...I said no because I dont and he said well at your age your heart will be fine!! Ok so it doesnt matter that I have had chemo and 2 years of Herceptin which can cause congestive heart failure in whoever has it?? I came away feeling less than reassured and a bit stupid.  He had requested I have an ECG and gave me a slip of paper to take away with me and also said he wanted me to have an echo and that I must cancel my treatment for the following day but rebook it for a weeks time.  I had the ECG the following day and then telephoned my nurse to see if they had the results so I could book my treatment back in.  She told me I had to wait for the echo which would be done before my next clinic appointment on the 8th November and that I would get an appointment in the post.  I asked her whether the delay in treatment would be a problem and she said no as it was only 4 weeks??  In the meantime I had an appointment at the breast clinic where they scanned my breast and told me it was fine but that I did have a lot of glandular tissue where I was feeling the lump and pain, so it wasnt my ribs then!!  I then received a letter for my Echo appointment for the 16th November!! Luckily my mum managed to get this brought forward for me as she works at the hospital and I went and had that done on Tuesday...the guy who did it said it all seemed fine but he was surprised when I told him I have a heart abnormality as he hadnt been given any of my history, just a referral letter!!  So as I said this has all been going on and I have now missed 2 cycles of Herceptin and I had my CT wednesday...get the results tomorrow.  I am just really worried that this is a long time to go without treatment and I have been really tired and getting some aches and pains in my neck and back.  I dont understand why they messed me about so much and made me wait so long for these appointments when it could have all been done in one day and I need not have missed any at all...especially as my heart is apparently fine.  I feel that oncologist just didnt have a clue as he doesnt know me and my situation...when I first discovered a lump in my breast back in 2007 it grew from nothing to almost 3cm in the space of 2 months and apparently spread to my chest in that time too.  I dread to think whats been going on inside me the last 7 weeks!

Anonymous
  • FormerMember
    FormerMember

    Dear Chrissie,

                      It is only natural that your initial fears have escalated after a less than inspiring appointment with the oncologist and the wait for various tests. The fact that you have had to miss a couple of treatments only adds to the anxiety but try not to let your imagination run riot (easy to say I know). The symptoms you have may be caused by something less serious and when you get your results tomorrow I truly hope that is the case.

               Thinking of you and keeping everything crossed,

                Love lizzie xx

  • FormerMember
    FormerMember

    Hi Chrissie, sorry you've had such a troubled time just getting some answers that make sense of what you are going through.  You don't seem to know your oncologist very well so I wonder whether a direct phone call to him/her or their secretary asking for an urgent appointment to discuss your situation would be appropriate - you are important and you have to fight, unfortunately, for the right to know what is actually going on.  Unfortunately, not all the health professionals will know your background - they are just handed pieces of paper and fill in sheets, carry out what is required.  Therefore, your life is really in your hands.  The NHS is fantastic but you, unfortunately, have to be the one to handle the mechanics if you want answers - and don't feel stupid, this is your life here.  If you are having pain it needs to be sorted - now!  I  had Herceptin for a year and it was important not to have too much time between doses as it was cumulative so, yes you must sort this too.  I do hope you can find the strength to stand up and get things going and please keep us all informed.  Sorry for your frustration and fear which is understandable - be strong.  Keep trying until you are happy with what is going on and let us know.  God bless, keep well.  Ann x

  • FormerMember
    FormerMember

    Hi Chrissie,

    Very good advice from Lizzie. The mind can start playing tricks with you after such a long time.Just wait until tomorrow and you will get your answers.

    All the best.

    Take care and be safe Big Hugs Love Sarsfield.xx

  • Hi

    Tomorrow will seem like an eternity but I am sure all will be well for you, I look forward to reading you results update.

    Some consultants lack tact and diplomacy and can be real idiots, sounds like your temp might be Carol's onc, tell him kesserbird will be up to sort him out if he messes you about.

    sure carol will

    take care and good luck

    john