I feel like screaming ! phil has had another area burst on his side that now brings the total up to four now on him dont know what we are going to do now , its really getting him down . Being as his cancer comes under the very rare catogory they say that they dont know what to do so just watch and see . Personly I would like to have more info on what the blooming hell is happening to him ! Our docter came yesterday and said this was going to happen as she could see the swelling, she is the only medical person we have conntact with as phil been discharged from hospital ( thats not what i call it i say left to fend for yourself) cant get the right drainage bags as you have to order them in made to measure and then dont know if any good . What a way to start the day on top of all that had blooming asthma attack . sorry about moaning so much but got to let of steam xx
Feel free to scream, rant, rave and generally let off steam. That is what this site is all about - we understand. It does sound as if you are dealing with the sh*tty end of the stick just now and I can understand this feeling of abandonment. It sounds as if you need more professional help so do ask your GP.
If it helps rant and rave all you want.You have been let down badly.Try the district nurses a the g p surgery,Macmillan nurses in the phone book,You shouldnt have to do this.Get on the phone to them all dont get wound up be calm.It will hard to be calm
I know keep positive easily said I know,hope things improve very soon all the best Andy
Hi Chipie, ask your doctor to refer your hubby back to the hospital, i cant understand them saying they dont know what to do, after all there cant be a cancer that no doctor knows about, even if there's only a few people with the same cancer as your hubby the doctors must have some knowledge of how to treat it. If you cant get answers at the hospital then get a second opinion. This must be so hard for you both to cope with on your own, its just not acceptable.
