my name is chipie and im a full time carer to my husband . He has advanced cancer and is under our G.P only we have no contact with the hospital at all as they say there is nothing more they can do for him . his cancer is very rare its called pseudomyxoma peritoni and they cannot operate on him as it was found to late . we have been to basingstoke where they done a c.t scan and found out that it was much further along than they was lead to belive by our local hospital they operated on him and thats when they found out how bad he was . the care that he recieved in there was superb and we was very sorry that phil would not recieve this much care when he got home .
I look after phil on my own and it is extemly tiring I have had marie curie nurses in but phil didnt like having differant people in all the time (hes a very private person) and couldnt handle having differant nurses coming in we have one disrict nurse who comes in to change phils dressings as we have known her since the begining . they sent various other nurses in but phil always sent them away and said its ok and i would change his dressings for him this is quite hard work as it normally takes two of us to move him .
I have read lots of post on the site and see that theres a lot of people like me out there . I get very tired and frustrated and very often think why is this happening to us we are only in our 50s and it just seems so wrong .
