My 19 year old son has been fighting this rare cancer for ten months and i am trying to find anyone out there who has any experience of it. I would appreciate any advice or guidance regarding treatment options.
FormerMember
Hi CG. Firstly what sort of rare cancer has he got. I will help if i can All the Best Jill NZ
Thanks for the reply. Pineal is a gland in the brain. very much a teenage cancer really. Just wondered if there was anyone else i could share the experience with.
My husband and I are the parents of two wonderful kids. In June '06 our (then 14 yr. old) son was diagnosed with an intracranial non-germinomatous germ cell tumor. According to his oncologist, this type of tumor is very rare. Our son has had 18 months of treatments (including chemo, radiation, and stem-cell transplant). In Nov. 08 we learned of his relapse. He started another chemo regime in Dec. 08 and tomorrow another MRI will be taken to learn if the chemo is slowing the growth of cancer cells. Currently, I do not have any information to help you; but, prayfully you will find it soon!!
