Cervical cancer age 25 no symptoms,no children

2 minute read time.

hi everyone,

i was diagnosed 10th may with cervical cancer,all this coming from my first smear test 2 days b4 my 25th birthday.

abnormal cells (severe dyskaryosis) were found and i was sent for a colposcopy.here she found the area affected would be too painful,and too large for her to do minor biopsies,as it was on the vaginal wall,so i was sent for the lletz treatment under genereal anaesthetic.

i recovered fine from this,was too busy wanting to eat something that i was allowed home a couple of hours later.5 ridiculous weeks of waiting then i get a phone call telling me i had to go back in and have a knife cone biopsy.Through all this i was never actually seen by the consultant who was doing my treatments,i was seen by one of god knows how many of his team,just telling me all text book information.But always saying the cells were not cancer,they were pre cancerous!!!!

i wasn't too worried about the operation thinking it would just be the same as before,i was wrong.Once again i wasn't seen by the consultant,another different member was sent to see me.

Waking up from this was like being kicked in the guts with a sledge hammer,i dont know if i had a bad reaction to the anaesthetic or what but it was definately painful,i was given morphine which i dunno what all the hype was about it didnt clear me of pain.plus could i get anymore.....oh yeah had a reaction to the morphine was covered in a rash!!lol,i laugh now!!

what was more scary was the sight of a drip and catheter,noone had told me that i would need these,the fact that now knowin i would not be going home i was a mess.once again my consultant was not seen,and it was actually the nurses that informed me more,also telling me i had packing also to stop the bleeding, which i had no idea about,thought that was just the catheter.

on mon i had to go finally meet the consultant,3 weeks after the 2nd op,for him to tell me i had cervical cancer,something i never prepared myself for hearing as was always told "pre"cancerous cells.Apparently he has been meeting other specialists to discuss my options as i am a bit of a dilemma,25 yrs old (a baby as he called me),and no children (something i've always wanted with my partner but wanted to do everything the right way,we just bought our 1st home together and are in the middle of doing it up)

a hysterectomy is the ideal treatment,(im actually filling up now just writing it),however a trachelectomy has been offered,i have been told this isn't a very common procedure but if anyone has any info or experience,i would really love to hear from you.

Anonymous
  • FormerMember
    FormerMember

    Hi missjaxx, I'd already posted on your other post then came across this one. How awful for you. I can't believe no-one actually explained to you what was going on.

    I really hope there are other options available before finally considering a hysterectomy. I'm sure there will be others on this site who will have more of an understanding than I have. I had a different cancer to you.

    This is a great site where you will find loads of support and understanding.

    Best wishes hun. Christine xx

  • FormerMember
    FormerMember

    hi jaxx,

    sorry you have had to go through so much, and at such a young age, as the saying goes on here.... welcome to the clubno one wants to join.... but you`ll be glad you did...

    liz xxx

  • FormerMember
    FormerMember

    Hi, so sorry to hear your news. I was in the same position 1 year ago - no symptoms, no kids and only my 2nd routine smear. I also got the "it's pre cancerous cells" and the "I can tell you its not cancer" speeches when I went for my colposcopy. Then on the LLETZ they found cancerous cells with only a narrow border of normal cells around it. I was offered the trachelectomy or hysterectomy and grabbed the chance for trachelectomy, and had the op June last year. For me it was absolutely the right decision because after histology they found out all my cancerous cells had been removed in the LLETZ - none left in the cervix, so if I had gone the hysterectomy route to discover that I had no cancer in any of my organs I would have felt cheated. It is completely a personal choice, and down to what your consultants advise and how badly you want children.

    I have heard that they have done 1000 worldwide and do then in a few sites in the UK (I went to the Marsden and was operated on by Prof Shepherd who invented the procedure). I have just had my 1 year clear MRI and am back to better than before fitness, so if its right for your circumstances I would recommend the trachelectomy.

    I hope you are getting the support and advice you need, it is such a shock and completely disrupts normal life and plans.

    I ma happy to try to help if you want any info on the procedure,

    Love Beckyx

  • FormerMember
    FormerMember

    Hi,

    It sounds like you have really been through it! Unfortunately the consultants are not always as consistant as they could be. After 5 months I am now suddenly under a different consultant who when I met him for the first time told me less than 2 weeks ago that I would die without a radical hysterectomy! Thankfully he was wrong and it turned out to be just inflamed tissue, reacting to my treatment, which means that I am winning my battle so far! It can be really upsetting when no one knows your history and my heart goes out to you!

    I wish I could give you more information to help you but will be thinking of you and hoping it works out for you.

    Karen xx

  • FormerMember
    FormerMember

    Hi missjaxx

    I’m so shocked on how your consultants have treated you with the lack of information.

    I am 25 and was diagnosed with cervical cancer in July this year, the size of my cancer was on borderline of having a hysterectomy or trachelectomy, I decided to go for the trachelectomy as my consultant gave me some good percentages of overcoming cancer, also I wanted to have a chance of having children later, unfortunately my cancer has spread into the lymph nodes and I have now been told that I need to have radiotherapy but I feel that I still made the right choice for the operation.

    Thinking of you

    Samantha xx