healing/ recovery and getting some balance back in my life

4 minute read time.
I was accepted yesterday for the Hestel and balans course here in holland which means healing/recovery and balance think the balance means balance back into your life. I am real pleased as there is no balance in my life at the moment i feel like i am on an emotional rollercoaster and am going though many fears i never had before. I finished with chemo 8 weeks ago and unfortuntely had quite a few side effects first week mouth ulcer, third week nausia, and also the memopause came on thick and fast, and i had some panic attacks. Week 4 started vomiting every morning and nausious every waking moment. This went on throughout my chemo and even after for a few weeks. Only went outside the house to go to hospital for chemo and hospital appointment for two and half months, my nurse had also told me to limit visitors to avoid infections so saw not so many people. Week 5 they found that i had low bloods and was aneimic so then had to have an apex injection every week. The last weeks i was sooooo depressed and had to see a physciatrist. She was brilliant i was starting to think i was going crazy, outbreaks of sobbing my heart out, but when i went to chemo, there were people there laughing and talking of shopping and housework, and when i came on here i saw high spirits in the chat room why was i different and not coping. She assured me that i was not abnormal and i was having a healthy reaction to what was happening to me. I had found out about the lung cancer in march 08 had to have tests to see if i could have surgery, it wasnt sure if it was in my lymph so had to have operation to take a look, this was wed 9 april on mon 14 april i got the results ..... they could operate 16 april i had half my left lung removed the edges of 3 ribs and the tumour. Had to wait 3 weeks to find out if it was all gone and on the 9 may i was told that the edges of the tumour were all clean and that the cancer was gone, and that on the 6th June i would start 9 weeks of chemo just for safety in case any cells had escaped before the op. After the chemo finished i was still nausious and vomiting for two weeks, and then i tried to go out. wow this was hard i was scared ... scared to go walking down our road with the dogs....... scared to be a passenger in my husbands van....... scared my dogs would get run over..... scared my husband would be in an accident. OH what was happening to me. Gradually i made myself go out building up the walk and the journey. That was then, this is now, i still cant believe the cancer is gone, i live daily in fear that if it is, it will come back. I am still depressed, i just cry sometimes for such silly things and its sobs not tears. I am trying real hard to move forward and go for walks with my dogs every day slowly increasing it but the op is still very painful, and i am able to go further as a passenger, strange thing is i can drive myself ok. I still see the therapist every two weeks and the hospital has got me to start a course on the 25 of this month twice a week 2 hours with a group of people after cancer and a therapist and then two hours in the gym there with a physiotherapist. I am really looking forward to this i had the final intake interviews on thurs with the physio and she is pleased with my progress, breathing and walking and friday with the physcotherapist who when i told him the above said i am dealing with everything in a healthy manner, let the tears come and its understandable all your fears and that i will learn why on the coruse. That i have been through alot over the last 5 months and the 12 week course will help me go back to work and function in life. Its strange cause i said to him yesterday it feels like i was not in my body when all this was happing the tests, the waiting, the op, the chemo, that i was there but watching it, and now its real somehow and i have to deal with it all.I live in holland am married to a dutchman only been learning the language a few years and thats hard at 49 so hope i can keep up with the group and understand everything. On the 22nd sept i have an appointment with the lung doctor and will also have an xray and results. I am real worried about the results, but also think that if he tells me its clear then i will finally be able to believe the cancer has gone and celebrate. sorry this was a long one have been wanting to do this for ages but wasnt ready, now i am. I have got alot of support on this site by reading all the blogs and forums and also sometimes lurkin in the chatroom, and also i have made two very special friends here. take care and lots of strength to all sufferers survivor friends and carers caz x
Anonymous
  • Hi Caz,

    What a horrible experience you have been through but now you are coming back to some sort of normality. Cancer certainly does things to your mind as well as your body. It was only when I was beginning to recover that I read a booklet which said that cancer patients often couldn't concentrate but that it would soon get back to normal. During my treatment I found I could not read much more than a paragraph in a newspaper. All the books I had stock-piled to read were left untouched.

    I am sure writing down your story will be therapeutic for you. When you are in the depths of this illness and treatment it feels like it will never get better but you can climb out of that black hole. I wish you all the very best for your continued recovery.

    Regards

    KateG

  • FormerMember
    FormerMember

    You are so brave.  It has been a long journey for you, and you are through it now.  My friends tell me that it takes several months to get your strength and energy back.  Even so, you have fought this evil disease, and you have won for now.  

    Get plenty of rest and don't hesitate to go out and have fun.  Go cruising on the canals, or whatever you enjoy doing.  You could do worse than sit by the beach at Blankenberghe and listen to the sea for a while.  (A boy I knew 50 years ago went for a school trip there).  

    Don't rush back to work, but if you want to go, start very slowly, one day a week and build up.  Stay on the same level as long as they will let you.  Employers can be remarkably understanding about returns to work.  Well, here they can.  

    You have friends here.  Thank you for your help with my friend.

    love

    Ruth

  • FormerMember
    FormerMember

    I can totally empathise with the fears about going out.  I had about eight weeks where the only place I went was the hospital in a taxi, and then immediately home and to lie down again.  The radiotherapy was to my pelvis and we were warned that it would possibly have adverse effects on our bowels especially after the internal radiotherapy.  When I started to recover enough from that to go out, the first thing I needed to know anywhere was, how far away is the loo?  Everything seemed incredibly busy and niosy too, as I had got used to just seeing a few people every day.  Public transport felt alarming.  I also thought I might collapse in the street as I felt quite weak.  I too went hurtling headlong through the menopause whilst on the chemo/radio so had all those problems.  I decided not to take the HRT as I looked up the side-effects of the tablets, and was also worried about the cost of the prescriptions. Decided that I couldn't feel any worse than I already did!

    I'm so glad that you have found a course that will help you reacquire balance in your life.  It's like freeing ourselves from something underwater and swimming up to the surface again.  I hope that once you have had the results of this scan you will feel more confident, and that some of the sadness will start to ebb away.  I think a lot of us have the sudden overwhelming emotions - I tend to break down now when I hear bad news of other people - think I'm so used to it for myself that I'm beyond it meaning much!

    Thinking of you, and looking forward to hearing that this healing course has had a positive effect on you - and that things have started to go right again for you.  xxxx Penny