Chemo help

Less than one minute read time.

Hi

 

My name is Catheryn, this is my first ever blog.  I have had surgery for bowel cancer and am on a trial 12 week course of adjuvant chemo.  The drugs I am having are xeloda (infusion once every 3 weeks) and  capecitabine tablets for 14 days then 7 days break..  Is there anyone else out there on the  "Scott trial" ?

Also has anyone got any comments re peripheral neuropathy casused by chemo drugs, (numbness and pain in fingers), mainly how to get through it..

Would love to hear from anyone who has had similar experience.

Best wishes

Anonymous
  • FormerMember
    FormerMember

    Hello Catheryn and welcome to the site no one wants to be on!

    I had neo adjuvant chemo -before  surgery- of oxaliplatin and capecitabine (this is the same as xeloda) for 12 weeks, then I had combined liver and bowel surgery. Then I had cape again for 24 weeks.

    On diagnosis  in Nov 08 I had liver and lung mets but the chemo didn't shrink anything so I am now on 5FU and folinic acid for 12 weeks then a scan to see how the lung is. The liver and bowel are still clear. I had only slight tingling in my fingers when I was on the oxi so I can't really help with that except to wish you well. I have sailed thru the chemo, the only thing is that I hate hospitals and I find it really difficult to go there.My chemo is now weekly but I am fine with it, just a bit tired.

    I have not heard of the scott trial.

    Best wishes, keep blogging and look at triplets and friends on the bowel cancer forum. It is a long running thread and we all support each other there.

    Love Jen XX

  • FormerMember
    FormerMember

    Hi Catheryn

    I finished Oxaliplatin and Capecitabine (Xeloda) just over 3 months ago. I'm afraid I haven't heard of the Scott Trial, is this 3 months of chemo rather than 6 months? I had minor problems at the start of chemo.....tiredness, tingling hands and feet. The peripheral neuropatyhy didn't start until the 5th cycle, and unfortunately I still have numbness in my fingers and toes. Hopefully this will eventually go. Do let me know how you get on and please get in touch if you have any questions.

    Good luck!

    Angela xx

  • FormerMember
    FormerMember

    Hi Catheryn

    I've just had my 4th session of Oxalaptin thurs and started the capecitabine that night. I find I have tingly fingers for about a week and a half then it goes. Just keep away from the cold and don't get stuff out of the fridge or freezer!!!! Excuse not to make drinks lol.Not had the tiredness but wakeful nights especially when taking the steroids for the first 4 days after ox treatment, doesn't atter that i take them about 2pm. Don't care about all the side effects just so ong as it shrinks my tumours. (bowel, primary and mets to liver and lungs). No chance of op at local hospital but have reqested 2nd opinion, of which i'm awaiting appt.

    Take care and hope you get what you want from the chemo and its not to stressful.

    xx