Hi there, this is my first blog and I felt I had to write it to address a few things that I have found out:
a) When I first joined, I would sign in to read blogs, forums chat etc. Now I find that I only have to sign in to have a chat or write a blog.
By accident:I found out that I don't need to sign in or even be a member to read any of the forums or blogs or look at photos or videos.
b) I also found out that I could see the names of all members without signing in.
c) I could further match screen names to pictures by browsing through the picture/videos and felt betrayed, vulnerable and shocked.
I have spoken to a few members in private about this and therefore feel the need to find some way to protect members.
Therefore: I feel that our names should not be added to blogs, forums. Pictures and videos should not be available for full world to see, but members should be more protected otherwise why do we become members?
I have no problem with the site sharing their general information etc, but sharing what we may think is shared between us; to find out that that it is shared by the whole world is in my view a breach of trust and confidentiality.
No wonder the site is now being hacked by fakes and some of us get unwanted emails.
I have closed down emails in this blog settings and configuration of blog as I do not want to be hacked or receive any of these malicious emails as dealing with Cancer is hard enough on a daily basis,without having to deal with people who think it's a laugh for them and get their kicks.
The people I have spoken to in the chat room about this, know who I am.
Therefore it is not in fear of not showing my name to members that I write this blog, but instead raise your awareness and help get our members better protected.
I further hope that admin read this and are able to do something more to keep us better protected or is the fact, for us to just be careful who we comment on, what pictures we upload and further watch what we write in any blog? This should not be the case as genuine members are honest with each other, reply to each others blogs etc. But I do feel betrayed as I want to remove some of my photos and cannot do so.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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