Hi all
I wonder if there is anyone who may share their experiences with me.
I had nephroureterectomy and lymph excision for transitional cell in pelvis of kidney 4 weeks ago - All that was visible was excised but it has come back as G3 T2 growth and my surgeon is so negative. I have been fer to oncologist for ? chemo. I have not had any further scans and am recovering from the surgery. Has anyone been through this or had any experience - I know its rare hence the poor info around it.
If its all been taken out - is there a chance that the lymph did its job and it hasn't spread? I have not been given any info - no instructions post op, no nurse specialist input, no contacts to anyone in fact ( I live in Wales!!) though thankfully Macmillan at hospital have now contacted me but it would be good to hear from anyone in similar position.
