Axillary Clearance - Surgery v Radio Dilemma

3 minute read time.
Oh I have a dilemma and spent last night seriously stressing about it. When I had my mastectomy I had a sentinel node biopsy and they took 5 lymph nodes - 1 of which had the little blighter in, so I have been told that I will need to have an axilliary clearance after my chemo. This can be done with surgery or radiotherapy, I don’t have to make the decision for a few months but I am already tying myself in knots and getting upset about it. OK I’m scared of the dreaded L – lymphoedema! – and of needing extra time off to recover. Now my ignorant, non scientific heart says, its only 1 node out of about 20 or in fact 1 in 5 - what are the chances? Why do we have to do anything about it? It’s OK my sensible head says because it’s still a risk and you don't want to have gone through surgery, chemo and radio only for there to be a rogue cell hiding. But it amazes me that with all the billions spent on cancer research that there isn't a more reliable way of screening your lymphatic system. I know that it would be foolish not to have a total clearance, so I just have to decide how. I had said that I didn’t want more surgery, it would be sods law for the lymph nodes to be removed only for them all to be clear; so I was veering toward having them dealt with as part of my radiotherapy but there’s a slightly higher risk of the L word and scar tissue and god know what else. If I went the radio route I could be back at work sooner, so it would have less financial impact as I would have longer in half pay. Even as I type this, I can’t believe I am basing my choice of treatment on a financial factor especially as I can cope with an extra month’s absence. That leaves surgery, plus recovery period etc. I didn’t ask many questions when I was diagnosed, in hindsight I probably should have asked more, but was just relieved it would be gone. However the reality of surgery and what you are left with makes me want to know exactly how they would perform the clearance, what are the risks, what scar tissue will there be, what will the scar look like – frankly lovely as my surgeon was I wouldn’t give him 10 out of 10 for needlework, I don’t want more of the same on my underarm. So what has caused my distress and fear? Gardening!!!! Yes you read correctly gardening. I have had a good week,probably done too much but I have done some of the things I was doing before my op, not as fast, but I have done them, without gloves and loved it!. I can be and am a little blasé about looking after my hands, because I heal well and I still have ¾ of my lymph nodes – but once they are gone, I will have to be more careful; I’ll have to wear rubber gloves and gardening glove for all jobs, no more feeling the soil, I’ll become addicted to hand cream; I’ll have to be careful what I lift, worse I’ll have to ask for help!! I feel really resentful that these are yet more adjustments that I have to make, on top of losing a breast and my cleavage and making sure my tops cover what’s left of my chest. I don’t want to have to make more adjustments, I don’t want to be hear and making this decision. I want to get out of my pram and scream and howl. Having gone through everything else on this journey with very little fear, I now feel scared, not about the op but about the 1 in 8 chance of lymphoedema when support for it appears to be so patchy. I have the clinic and blood tests tomorrow ready for cycle 6 on Wed, so better draft some question for the consultant. Ok enough whinging from me, getting back in my pram now. Love to all Carol xx
Anonymous
  • FormerMember
    FormerMember

    Carole...you know what I think....the important thing is that you do what is right for you.  You will know what is right for you when you come to make the decision....

    Lots of love

    Diane and Denning xxx

  • FormerMember
    FormerMember

    Carole...you know what I think....the important thing is that you do what is right for you.  You will know what is right for you when you come to make the decision....

    Lots of love

    Diane and Denning xxx

  • FormerMember
    FormerMember

    How did all of them pop up.  Shit day.  Stood up tonight and had a few wines......sorry Carole....you aren;t seeing treble but I have no ida how to remove them

    Dx

  • FormerMember
    FormerMember

    Aah thank you for your kind comments, luckly my visit to the pit of depair was temporary - havng cried myself to sleep (pathetic or waht) I woke up feeling resigned and a bit flat - well not physically - but not scared or tearful.

    I saw the girly consultant yesterday not the other one, although that's unfair because the other one has been really good.

    Anyway went armed with my list is questions two pages worth in my little note book. She was lovely and answered all my questions, she explained about the sentinal node and said that the lymph nodes could be done with radio but it couldn't guarantee getting them all, the only way of doing that was surgery because that way they knew they would all be removed. She also said that she thought sometimes the info given about lymphoedema caused more worry, and that it was just important to be sensible - I can do sensible.

    She couldn't tell me about the suregery, but I have an idea of how much longer I will be off - an extra month. I can cope with that - well if payroll actually get my start date right - but thats another story.

    I then spoke to the breast care nurse who was lovely, definately a glass half full person - me I'm glad if theres anything in the glass.  She explained how the op is usually done.  Her attitude is that if we take them all out and there are no more little blighters it only got that far and no further.  Mine had been that if there are no more blighters, then I had the op for nothing.  But she is right - much better way of looking at it.

    Consultant has also said I can join the local ladies gym, so off for a visit tomorrow - washboard tummy here I come - yeah and pigs might fly.

    So I have made my decison, I'm going to have the surgery not looking forward to more stitches and numbness etc but safest bet.  Afterall no point going through all this to leave one little rogue cell growing an army.  

    Thanks for all your support.

    Lots of love

    Carol xxxxxx

  • FormerMember
    FormerMember

    I'll give you a call.

    Carol xx