How changes to the benefits system could affect people with cancer

1 minute read time.

The Government is changing the benefits system.  Macmillan agrees the system is too complicated and needs simplifying.  But we’re worried the changes are going to leave more people with cancer facing poverty.

 

What is Macmillan worried about?

Firstly, we want people who are out of work because of cancer to get financial support for as long as they need it.  The Government is planning on limiting this support to one year for some people.  But we know that people with cancer often take longer than twelve months to return to work.

 

Secondly, people shouldn’t be treated differently in the benefits system because of the type of treatment they receive.  At the moment only patients receiving non-oral chemotherapy automatically receive financial support, because of the effects of the treatment.  Oral chemotherapy and radiotherapy can have similar effects, yet patients receiving these treatments may have to do job interview practice to get their benefit.

 

Finally, people with cancer should be able to get financial support, as soon as they need it, to help them with the extra costs they face because of their cancer.  Under the new system, people would have to wait six months before they could even apply for this support.  But we know people with cancer face immediate costs including parking, new clothes (due to dramatic weight changes) and bigger heating bills.   

 

What is Macmillan doing about this?

We’re campaigning to put the fair into welfare.  Email your MP and ask them to speak up in Parliament on behalf of people with cancer.  On the first day of our campaign over 500 people took action.  We want to tell every MP about these issues. 

If you want further information on the changes to the benefits system you can read more here.

Anonymous
  • FormerMember
    FormerMember

    well said when i was first diagnosed and in hospital the benefits people took 6 weeks to give me any money on ESA so for all that time i had only my sons child credit and and fam allowance to live on i applied for 2 crisis loans and they are now taking these back off my money at £17 a week its absolutely disgusting to treat us like this when we are going through such turmoil in our lives as it is i never got any heating payment either even though it was such a harsh winter where is the reason in all of this i just cant understand the harshness of it all no matter how hard i try

    jen 52

  • FormerMember
    FormerMember

    Hi Jen

    Thanks for your comment.  I’m sorry to hear your experience was so difficult but thanks for sharing your story.  You’re right – ESA is a very important support for people with cancer.  I think it's also really important that we make sure people with cancer can get ESA for as long as they need it.  We want to make sure the Government make decisions that will help people with cancer.

    Thanks,

    Edward

  • FormerMember
    FormerMember

    At moment only get my N.I. Stamp paid via Incapacity Benefit and they have not changed me over to ESA. I am also not entitled to any kind of D.S.S as I am married!!!

    I have been advised by a Welfare Officer that I will not be entitled to any D.L.A. either as the system seems to think that Breast Cancer is curable. In my situation, I require further operations over the next year due to this Cancer and due to Genetics. Have already had Chemo, surgery, Radiotherapy the past year, also have Oestiopenia bordering on Oestioporosis.

    So why is it that a married woman still has to rely on her husband and not be assessed as an individual?

  • FormerMember
    FormerMember

    Just a bit of advice on parking charges at Heartlands Hospital in Birmingham. I found out that I could buy a 20 exit pass from the car park for £26. A big savin when it can cost me up to £5 for a visit when chemo is being done once a fortnight!. It may be worth checking if you rlocal hospital has a similar facility.

  • FormerMember
    FormerMember

    Carrot Tops - thanks for your message. I'm sorry you're having such a hard time trying to claim benefits.  I know you said you'd been advised by a Welfare Officer but my best suggestion is contacting a Macmillan's Citizens Advice Bureau and their Welfare Benefits Advisers in your local area.  They'll be able to suggest the best course of action and help you claim any benefits you're entitled to.  You can find a list of them here:

    www.macmillan.org.uk/.../MacmillanLocalBenefitsAdvisers.aspx

    There's also the Macmillan helpline (0808 808 00 00) where you can talk to one of our benefit advisers.

    m.dowding - thanks for the tip.  For anyone who has to regularly visit a hospital it's always worth asking if there are any parking discounts.  They often exist but aren't that well publicised.