Well i am so tired today i went to hammersmith had to be there at 8.15am for my CT scan all went according to plan then i had to get to northwick park before 11.30 to see onco, That was a bit of a trek but got there and she told me that she had applied for a trial treatment which i knew nothing about she said it might be an option but good news sort of anyway they have to test my cancer to see if it will work and if it does i will get the basic chemo plus the new drug and if it doesnt i will still get the basic chemo.
Not sure which way round whether its going to be surgery first or chemo first she has to meet with surgeon after friday thats when i have micro bubble scan but they will let me know next monday or tuesday
Well i have waited 8 weeks so whats one more
She said i was really lucky she applied for 2 of us and i got it the other person didnt get it now i feel guilty i know its not my fault its the post code lottery rearing its ugly head again why do they have to do that to people its not fair anyway i have to stay positive about whats going to happen to me i hope to have more news next week
Thankyou for all your support during this unbelievabley wierd time for me and my family xxxxxxx
FormerMember
Hi Rose
Glad to hear you're good news. I will be thinking of you.
Great news Rose. No guilt, you are just a better candidate for the trial. There are all kinds of pre-requirements for trial, can be all kinds of things, even as simple as you've had another cancer before. Unless they tell you, you won't know what allows you to be selected and another not. Trials are strict in order to control results for future treatment. Once they get through that, then they can open it up to others. So its not personal for you or for the other candidate, so no need to feel guilty. He/She may get on another trial that you would qualify for. So carry on and sounds like things are moving along and for that I'm truly grateful! Best, Lori
Thanks for updating all of us here, a lot of folks were about to turn blue holding their breath for your news. I'm so pleased things are moving forward for you I'm about to celebrate with a cuppa and a whole pack of Jammie Dodger bykkees. Two things come to mind though. Firstly both my Ma and Pa in law had cancers and both got fantastic treatment at Northwick Park Hopsital. Ma was initially given 6 months or so but took part in a trial and 14 years later was still giving me a hard time. Secondly, now that you are taking part in a trail I guess that gets you out of the 'normal treatment loop'. They need the info that you and your treatment is going to supply so you can probably look forward to being messed about less. At least I do hope so anyway.
Hi Rose have followed your story for a while, it is great you are going for the trails please don't feel guilty, but i can understand how you feel, look to the future, keep smiling and keep us informed of your progress, cheers sandy.
