Just got in to hospital, today is Ambisone, Asparaginase and the IT Chemo. So I'll have to lay down for a couple hours after that as well, gonna be a long day... and I missed the sandwich trolley... damn!
Felt pretty good so far today, nothing really to report to the Doctor I think, might mention getting another ENT appointment just to check up on how that biopsy they took from inside my nose is healing up just to make sure. Slept alright last night, from about 10:30 til 6:30 so a good amount really, definitely going to take all my steroids straight away in the morning rather than spreading them out through the day.
So not a lot to report, the day area here at the hospital is jam rammed, busy day. In fact they've been having a hard time getting people seats its that busy, I guess they never know how many friends/family people will bring them and to be fair to them they haven't asked anyone to give up a seat at all. I got the nurses on the ward a card and some chocolates today, haven't given it to them yet, waiting for one of the ones I actually know to walk by!
There's a few lifestyle things I really need to talk to the nurse about actually as well, I think my Mum and Dad should really sit down with her as well and ask all the things they want to know, otherwise they're just going to worry all the time. End of the day avoiding public places when its busy and crowded is fair enough, but when your going to a hospital full of sick people 3 times a week anyway... there's got to be a trade off between well-being and safety, I can't stay wrapped up indoors all the time.
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I was in the hospital for seven hours in the end, so quite a long day, the intrathecal went fine and the intramuscular's were fine really as well. It's 5:27am... so I didn't sleep all that well, but I feel fine really and I can always sleep more later on. I'm pretty suprised, still I'll take it easy today, I've got to go in to University to sort out referring modules but other than that I've got nothing planned.
I still really need to talk to the specialist nurse about lifestyle stuff, the more I think about it the more I realise there's so much I just don't know if I'm allowed to do any more... but then part of me thinks, like I said before, since I'm spending a good 15 hours a week in hospital surrounded by sick people surely... I don't know, we'll see.
FormerMember
I'm glad it went well. The good thing about someone with a lot of trailers is that when they are called, there are plenty of seats freed up for everyone else. I would leave my chocolates at Chemo reception for distribution. Then you don't have to agonise about finding someone you know. For the first few sessions, you can have strangers every time, with varying skill at finding a vein to put the cannula in.
I hope you don't have to refer too many modules. It is so disruptive. If you keep working on but just have more time to submit your assessed work, it may be better than trying to defer the study for a year. At my university, they offered a module every other year, so that you could get to study it, but if you missed finishing it off, there would be another year to go before you could start it again.
