Discharged and back home

3 minute read time.
They discharged me yesterday! Great news, it's good to be back home, though its a big shock to the system having to do all the pills and stuff yourself, still on the steroids and some others to protect me from some of the chemo side-effects. But it is very good to be home. Didn't have to go in for chemo today either, but I did have to do to the ENT department to get my hearing checked out, been feeling a lot of pressure in my ears. Had the hearing test though and it was fine, well within normal sort of limits so at least its nice to know that all these gigs and that haven't damaged my hearing yet :P Yeah so then they put this camera up my nose... again... gotta love it when they do that... and it looks like that private hospital did a biopsy from the inside of my nose and theres a lot of old blood clotted up there blocking up one of my passages, so that would explain it. The doctor at ENT couldn't be sure though since he didn't have my notes from that private hospital... honestly I just don't see the point in private health care so far... okay fair enough when it gets serious hand it over to the NHS but at least communicate everything you've done properly. So tomorrow I'll get them to phone the private hospital I had the biopsy done and double check EXACTLY what was done and then we can sort it out, still I'm pretty relieved my hearing's not damaged or anything. Had a few messages from some more of my mates about it all today as well, last few people I hadn't told really, pretty sure everybody who I really want to know knows about it now so thats good. Just really want to get it to a stage where its out in the open and nobody thinks they're going to upset me by talking about it really. So yeah more chemo tomorrow, not sure how long I'm going to be for, I'll be in the day ward so hopefully they'll be people around to chat to and that but I'll have my laptop with me anyway, really gotta start getting on with work. I'm not sleeping that well yet, my sleeping patterns are all out of whack. I woke up at about 1am this morning and only managed to get another couple of hours sleep between then and 7am. I was hoping to get some sleep during the day after my appointment at the hospital, I did nod off for a bit but people keep phoning me up asking how I am :P still just means I'll be very tired tonight anyway. Side effects wise I'm okay so far, I really need to take to them more about when I can start to expect them to kick in more heavily, I've noticed that there are some increasing numbers on my appointment card so I assume the treatments gets heavier as they go through, but that is a total guess. Hopefully most of it will be treatable anyway, I've noticed a bit of indegestian late at night, still getting the odd headache but they're pretty mild and I think once this blockage in my nose is sorted out that should help a lot to. Another thing, I think I said already, I really need to talk to my consultant about is bone marrow transplants, I've been getting different information about how likely that is to be part of my overall treatment and I think it's something I should definitely be aware of as early as possible... especially since finding a donor might be hard because of the Czech blood in me. Plus I'd like to get a better outline of the treatment stages after the induction stage. But yeah, all's going well :)
Anonymous
  • FormerMember
    FormerMember

    Hi Will, thanks so much for sharing your latest update. I have to smile at the way you write, it is so vibrant, young and full of life - fantastic. I hope many more site members visit your site to read your updates.  Hope visits to hopsital have gone well and you are home to enjoy the New year, I do recall in last update 'drink is OK in moderation' - or words to that effect ........ I am sure you will remember those wise words. It also sounds like you are keen to catch up on Uni work, presume this is your 3rd  and final year so a busy one? I wish you all the best, and as you say at least you can take laptop into hospital with you. Can you access the internet OK, is it wireless or dial up? My brother was fortunate to be able to use the patient (and guest) wireless connection, p/word changed every week. It was not the most reliable connection and dropped at very inopportune moments but it enabled him to keep in touch with the outside world at negligible cost. It was certainly a Godsend for him - and many others.

    Thanks agaoin for your informative updates, keep them coming. Delighted to hear all is going to plan and all the best for 2009.

    Love Debbie xx