Since coming off the gut steroid Budesonide I've been feeling a bit
rough, lot of nausea and stomach cramps as though I'm full all the time
but I've hardly been eating; at least not anywhere near as much as I
normally do. The Doctors were worried it was the graft vs host in my
gut coming back but it looks like its just side-effects from the
steroids, they took a sample off me and as far as I'm aware that came
back fine. At least I've actually been feeling hungry for the first
time in ages, even though theres not a lot I want to eat.
The most worrying thing happened the the other day, I woke up and the
vision in my right eye had a great big dark patch over it and was just
totally blurry. I didn't think much of it at the time because I tend to
get blurry vision when I'm tired but it persisted for 2 more days so I
called it in on Sunday and went in to Hospital for a review. The
registrar there thought that it might be CMV virus behind the eye but
decided that I need to see an Optomotrist for a specialist opinion, if
it was the CMV then I'd be admitted and put on the Phosgarnate (a nasty
drug that wrecks my kidneys). So I went down to the eye hospital and
saw the Doctor there and she wasn't quite convinced it was CMV since
it's come on so quickly so I was spared Hospital admission for the
night and told to come back tomorrow to see a consultant who was more
experienced. I had 4 people look in my eye and they all concluded it
wasn't CMV, which was good news, and that it was a bleed in the back of
my eye since my platelets have been sitting so low recently. This
spares me sleeping at hospital and having nasty drug, but it does mean
I have to go in every day for a blood check to see what my platelets
are. That's a bit of a bitch seeing as this week I have a Physio
appointment AND my University registration but hopefully I can work it
round all that somehow.
So yeah I was pretty worried, especially when the Doctor told me if it
is CMV then the scar left behind would probably mean my vision was
buggered for good. Hopefully that's not the case with just a bleed but
they did say it could days or months for my vision to returns to normal.
