A tough new years day but Happy New Year :)

4 minute read time.
I was in the hospital until just after 6 in the end yesterday, the intrathecal wasn't too bad, went a lot better than the last one. So it was just that and the ambisone, my platelet counts and my clotting were really good (over 190) and hopefully that lumbar puncture will come back negative so I don't have to have them once a week. They said I was responding as well as I possibly could be to the treatment so far, which is good, though they didn't manage to get through to the private hospital where I had that biopsy done (to be fair it was new years eve). I'm really hoping that the headaches I'm getting are being made a lot worse by this blockage their on about, so once they sort it out I'll be okay. Last night was good, cooked an absolutely blinding curry from my curry book, it was luuuush. Though truth be told it went pretty much straight through me after that chemo :P still, it was a job bloody well done. Set off a big old box of fireworks as well! Something I'm sure my neighbours didn't appreciate, but nevermind. Then my girlfriend and I just watched Jool's Holland's show... christ Lenny Henry and Al Murry had to be the two most embarassing old farts on TV last night, actually felt sorry for Dawn French sitting at home watching her husband act like a proper twat on national television. I'm headed to my parents house today, pick up some stuff and get my car back, be good to spend some time their for a bit, though I've got to be in hosptial at 10am tomorrow so I'll have to come back this evening anyway. Least I can get my PC, got plenty of games I haven't played yet, should pass some time. So the headaches have been pretty constant, I might see if they can give me something on-top of the paracetmol, plus I've been feeling a pretty sick and yeah had diarrhoea since last night... feeling alright now but not great, still no temperature or anything so it's probably just a side effect from yesterday's chemo. ------- Back in hospital! Looks like I might have a virus of some sort, though my stomach's been alright since this morning I've felt a bit sick and my headaches have been really bad, but then they said the intrathecal wouldn't help that. Feeling alright at the minute, my mum and dad are on there way here, shame I didn't get to go back and get my car and that but I can always get it at the weekend. Feeling okay at the minute, had painkillers and anti-sickness so I'm alright, not much of an appetite but okay. I'm starting to realise that the treatments and the hospital visits aren't going to be the tough part of this whole thing, luckily my mum is as tough-as-nails and I've got some of that in me when it comes to medicines and treatment. The parts of this I've found hard have been getting home, everything suddenly feels very... very... real. In hospital it's like an episode of Scrubs or something, kinda surreal so you can abstract yourself from it all but when you get home and all your care is in your own hands and the people around you, the pressure builds up. I'm pretty lazy at the best of times, so with these kinda symptoms, motivating myself to do uni work is going to be no fun at all... I've still got that essay to be getting on with, which truth be told I should be doing right now. Having said that, I know I'm going to do it, there is no fucking way I'm failing this year, okay it might cost me a first grade but I'm going to be graduating this course with the rest of my mates. Once I meet up with the student advisors as well and get some extra time for that project that'l take the pressure off, the rest of the work is pretty well structured really and with the odd 10-day extension I think it'l be fine. That was a pointless little rant, anyway, looks like they're going to get me some blood in a minute so chances are that'l pep me up a fair bit once my red cell count goes up, I'm feeling okay now really, not sure whether to push to go home or not. The nurse in charge of me is the bossiest of the lot so chances are I won't have much of a say anyway... besides it's jacket potatoe and beans for supper... :) ---- Mum and Dad have just been, smuggled me in a bit of pizza as well seeing as they're always pretty stingey with supper portions... they popped down to my place in Fishponds as well to deposit a load of ready cooked meals so that'l save me cooking for a little while! Feeling much better now, having my first bag of red blood, gonna have a second later on, had some anti-sickness and paracetemol feeling a LOT better. Looks like I was just a little be anemic and that was aggrevating my headaches, plus with the intrathecal... anyway, I can stay here the night, get the ambisone done ASAP and then have the whole weekend of hospital free time.
Anonymous
  • FormerMember
    FormerMember

    Hi Will, not the best of starts to the New Year - but lots of positives, including the ready cooked meals and the very positive, "I will graduate" this year with my mates. You are so right, involve the boffs from the Uni and get them on your side and it will make the planning of your work easier.

    I hope you have a good night's sleep and feel refreshed after the top up - and yes, understand what you say about being out in the real world, managing everything and looking after yourself, just maybe you will have to be a little 'kinder' to yourself,  especially so son after chemo!

    Fingers crossed for a hospital free weekend and of course health, happiness and success in 2009

    Love Debbiexx

  • FormerMember
    FormerMember

    Hi Will, ask your doctors about caffiene after your intrathecals to help with the headaches. Helped me alot. Craig