Had the dreaded phonecall today! Have to go for a biopsy to test for lymphoma but have to wait 3-4 wks to get to that stage and another 1-2 wks for result! Feel awfull anyway just making it worse. Have told husband and he is putting on brave face for me, but when to tell the family? All they know is i have been unwell for sometime and had blood tests, x-rays and ct scans and trips to hospitals, but when to tell them, what and who? Can anyone out there share their experiences? Great present for my 48th birthday on monday!
Love to all x
FormerMember
...... hey youre only a spring chick!!!!
just go and have a happy birthday
the docs n nurses will look after you - you´l be ok !
just tell your family everything and get your team together (for support etc)
my son had hodgkins 10yrs ago at the time the nurse said if your going to get cancer -best one to have - best recovery etc -he did !
now he has testicular cancer +secondaries(not related to hodgkins just his bad luck) and i read
best secondaries to have - best to cure !!!! hey do you reckon they say thatto everyone ?
sorry to hear what you are going through , my mum is in a similar situation. she is 47 and a routine chest xray showed that she had lymphoma in her chest glands. she had been unwell since september and the doctor said she had whooping cough but it turns out she had a lung infection and the xray to see how bad it was showed lymphoma. do u know what ur xray results showed orthe areas that might be affected? my mum had severe skin itching for two years, which is a main symptom of this, yet no doctor identified it as possible lymphoma and she even went to see skin specialist for a year who still never had a clue what was wrong! she started feeling not well in september and after the xray we found out at the start of march she had lymphoma. she had a needle biopsy in her chest while awake but they did not take enough of a sample to decide what type of lymphoma she had. so she had a biopsy where they made an incision under anesthetic. all in all we waited 6 weeks to find out, and it was hellish so i know what you are going through! hopwever if you know what areas of glands might be affected it is easier to work out whats happening. my mum has hodgekins lymphoma, and has to have 6 months of chemo every two weeks, and then will be cured! try not to worry, even if it is lymphoma it is more often than not curable. my mum had her first chemo on tuesday and has not felt sick or anything, just tired. dont lose hope.
hiya luv, try not to pre empt what is going to happen, you should try to be calm whilst you are waiting for the results, things may well not be as bad as you think they are so just enjoy your birthday and the love of your husband. The nurses and medical staff willl look after you and lead you through it, take care luv and be calm, from Ricky
i know exactly what you are going through. i am going through the same thing just now i have just had a second round of biopsies as the first lot were inconclusive. Although mine is a secondary mass in the lymph system.
You are in my prayers and let the family know what is going on. They will be a great support for you, that was the one thing i did wrong the first time round, i kept it to myself.
I wish you the very best of luck whilst waiting for your tests and results. It is an extremely difficult time for you and your husband but please try not to tie yourself up in knots about it. (Easier said than done). The waiting game is one of the hardest to play. I do hope that you manange to have a good birthday on Monday. In my experience the oncology team are usually honest about treatments and expected outcomes but if you are unsure, perhaps visit with your local 'lymphoma' support group. There you will find people who have been in the same or similar situation as yourself who can offer support and advice. Good luck in the future x x x
