Final pre-op clinic appt Thurs 18.
Long wait & boss still held up when I was called in as a Fellow came in - asked about the patient experience so far. The ideal opportunity to praise the attention while there, but point out the stress of waiting at each stage, being misled about timescales etc. Registrar came in as well & got a brief resume!
CT & biopsy clear (effectively a 3 month check up) so all options open. Finally consultant appears apologetically as he had just been called to theatre. However, stayed to answer questions & gave me the first definite recommendation so far, against Mitrofanoff. So neobladder it will be. I asked for a date & was left with registrar to sort out. All he could do was say probably wk beg Sep 12 - so I pointed out that consultant had been misleading last time saying second half of Aug.
Should be contacted next week - ring if nothing by Wed....
So I rang Wed only to be told still no listing - waiting on consultant to arrange & they couldn't even say when I will know.
I'm thinking of writing something to give them as feedback - perhaps after the op might be better than before!
