It's been difficult selecting what to tell family members.
Hubby doesn't have much medical know-how. I'm not always sure what he understands. He's been very supportive - saying it's my body & my decision. I explained that if I have a choice, I want to go for best odds for optimum outcome, even if it's a sledgehammer to crack a nut. He definitely doesn't want to think about the possibility of outliving me (even long term, let alone short term).
Sons have been given an edited version & are aware that I'm waiting to find out what treatment - I've said probablly surgery - will happen. As yet I haven't hinted at how big an op or the risk of a poor prognosis. I have warned them both that they are now at higher risk themselves. Neither appears unduly concerned at the moment.
My mother is the worst problem. She's 88 & is of course anxious - too much spare time to worry in. So far I've tried to present things in the best light and told her the absolute minimum. I took hubby's advice not to say too much too soon, but I find I'm resenting having to worry about her reaction to each bit of news or how to answer any questions she asks. I want to be honest but not overburden her, when the future is so uncertain.
Perhaps it will be better when I know for sure the next steps at least & can tell each what I feel they need to know. Then it will just be wait & see what happens.
