Treatment

3 minute read time.

after reading some of the blogs which other people have posted and some are the same or very near the same as what i have been diagnosed with it makes me wonder why they say "you need this that and the other" they also say what you have is "not aggressive" some of the things they have said to me make no sense at all, if i needed therapy / treatment to an aggressive form of cancer then i would be having it, but the time it has taken from me going in to have my lump checked to having it removed and then having more tests / scans to be told they cant find the primary sight.

it makes me laugh at the comments they come out with i am an easy going fellow and take things with a pinch of salt i tend to laugh at things that have happened to me over the past few yearsm i have epilepsy and type 2 diabetes, both which i can control but this disease seems to be uncontrollable by anyone i get told by the consultant that i will be having my treatment starting in middle of December 2010, it is now middle of dec (very nearly) and i have only just had my left tonsil out, if the lump they removed told them i had cancer and they are unsure of where it has come from why not take both of em out, but we seem to trust theses guys who are playing with our lives, although they say its a non agressive type of cancer i have why dont they tell me what type i have ??

Do they actually know themselves, i sit here looking out over a frost ladened Lincoln thinking of Christmas with my family and if im going to be here next christmas with my family enjoying it, after reading a few blogs on here i'm not so sure as to if i will be here next year.

To this end i have written to my pension holders asking about critical illness and the possibility of cashing in my pension if i am told i only have a certain time to live, they returned my email and sent me a claim form but i can only cash in 2/3s of it with the other 1/3 going to my partner for her to spend when i go which doesnt bother me she can have it all as far as im concerned, so have just been in touch with my ex wifes solicitor and told her that my ex wife would not not be recieving any portion of my pension either as if i am able to i will cash it in.

Anyway how do i go about getting my consultant to give me a time i have left to live, i know my gf dont want me to talk like that and says i will out live everyone i hope i do!!!!!!!!!!!!......... so why dont the consultants tell you just what type you have and how long you have had it????? questions and answers on a post card to Blue Peter LOL

Just wish that there would be a level playing field for people with or having just been diagnosed with this disease which has no age limit any level on wealthy or poverty it just hits when you least expect it...... it hits everyone when ever and however it likes the consultants vary in how they tell you some are good some are bad they whole diagnose thing i my mind needs to be looked at if the consultant thinks someone has cancer then they should act on it with the same conviction for everyone i dont know what non aggressive means i do in life but not in cancer if its not life treatening then why all these tests and such

am very much on a downer at the moment whether its the weather or me being back at work enabling me to think more i dont have a clue, everytime i seem to go into the clinic to see the consultant the same faces are there the ones who arent have they expired and the consultant has it wrong??????

 

Biggles13 

Anonymous
  • FormerMember
    FormerMember

    HI Biggles,

    Sorry that you are having bad day today. Your posts have me made me smile today so thank you for that!

    I hope that the consultants answer your questions re non aggressive and when your treatment will start. I am sure once that happens and you have a treatment plan you will feel better.

    Are you back on pringles and toast yet?

    Take care

    X

  • FormerMember
    FormerMember

    Hi Biggles - don't be down! I know it's the time of year that gets to us, and makes us all reflective, wondering what the next year will bring, but, personally, sod it, I don't want to know!

    I have a type of cancer that is classed as 'not very aggressive' and with mine, it means that it is slow-growing - and believe me, I'd rather that any day.

    Hope you get some answers soon, lots of love, Jeanie

  • FormerMember
    FormerMember

    Hi Biggles

    Consultants eh?  I think they just like to 'cover their backs'.  I was told that my cancer has 'gone' but, then again, the tests etc continue.  

    I hope you feel better soon - to enjoy your Christmas

    All the best

    Georgia XXX

  • FormerMember
    FormerMember

    Hi Biggles

    I am sorry that you are not getting the answers you deserve from your consultants, and also that the site has been making you feel down today. I suppose the truth of the matter is that sometimes the docs just do not have all the answers that we crave.

    I know that sometimes it can seem as though the stories here are all about the negative. People can, and do, beat this disease and it does not need to be a death sentence. There are many many people on here testimony to that. Although I have lost my mum to cancer, she succesfuly beat breast cancer and had 14 fulfilling years before being hit with a completely unrelated cancer. My brother in law was given a terminal diagnosis with only weeks to live, yet 6 years on he lives a fulfilling life and you would not know to meet him that he is a cancer patient. Please, please do not see your cancer as a terminal condition , you are living with cancer and while I do not know how that feels, I do know that every day in this life matters and that no-one knows what is in front of us. If we did, should we just wait for it to happen?

    Try to assume that those missing from the waiting room are no longer patients but free from the burden of cancer, and living fulfilling lives. The docs are probably tryin got get the best picture they can of what is going on so that they can treat it appropriately, and hopefuly this means that they will be confident that you can beat this. Non - aggressive is good - the alternative makes the battle even harder.

    I really hope that you get the answers that you deserve, no-one should be left with uncertainty. And I hope that tomorrow is a brighter day for you, I am sure that you have many happy Christmases ahead of you.

    Take care, ((hugs))Sharonxx

  • FormerMember
    FormerMember

    Hi Biggles,

    A word from the wise if they dont tell you what your

    progonisis is. Just sit down and tell them that you are not moving until you get your answers. Its your right to know what is going on inside your body.

    Just keep on at them until you get your answer. Good Luck mate.

    Take care and be safe Sarsfield.