I'm so lucky but I'm still terrified

1 minute read time.
I was found to have a tumour on my left kidney last Wednesday more by lock than judgement. thankfully I had been admitted 2 weeks earlier with pneumonia and being a coward when it comes to needles I did not let them do a chest drain so I was sent home and had to wait four a ct scan {coward} as an out patient but that was cancelled So I went back to my GP and sed id have the chest drain if they’d sedate me so she got me re admitted to Hospital thankfully where they did some more tests then admitted me to a word. That was on Friday the 6/3/09 and on Monday they did a ct on my chest and liver this is when they found my tumour on my kidney id had no symptoms as far as I new. But it was three day till they could get some one to see me from urology. The staff on the word were great they new but couldn’t tell me what was wrong they told me my lungs were ok that was a relief I new something was wrong but had no clue it would be cancer im so lucky to have found it its in the upper pole and extending for two thirds of the total length of the kidney in his words not mine I think its small but im not really sure I just nodded yes to him when he sed do you understand all that but it went straight over my head all I heard was cancer and take out your kidney and here I am now sat at home writing this load of tosh im scared to death and carnet show this in front of my kids iv got to weight 2 moor weeks to let my lungs to recover
Anonymous
  • FormerMember
    FormerMember

    Hi bigdave. My 18 year-old son also has a tumor in his left kidney, a big one.  The doctors did a lot of tests, ct-scans, ultrasound, bloodtests, etc.  He was scheduled twice for operation to remove the kidney but it didn't push through because it was too dangerous for him.  They did a biopsy of the kidney where they got some small samples (it's painless) to find out what it was.  It wasn't kidney cancer as we had thought at first, it's extra skeletal ewing sarcoma and he is receiving treatment already.  He had his second chemotherapy session just last week and his left kidney is responding well to the chemo, it has already decreased in size considerably.

    It has been a scary time for my husband and I.  At first,just hearing about removing his left kidney was devastating to us already then we felt that things got worst and I could not bear it when the doctors would mention the possibility of cancer or when they would mention stages-  it's still difficult for me till now.  There's a lot to cry about but I get my strength from my son, he's my inspiration.  His brother asked him, "how come you get all the major diseases? (he had dengue 5 years ago)" and he answered, "so you don't have to get them."  My son is a very courageous boy, it doesn't mean he is not afraid, just that he moves forward in spite of it.

  • FormerMember
    FormerMember

    i feel for you, i cannot accept it, feel like i just a nhs number, and fed up of being let down, i was told i could be cured, now they have found 2 more cancers, but i realised that at the age of 50, i have been lucky enough to get to this age, i am always saddened by children having cancer, and people on the news being wiped out in a car crash, at least we have been able to know , how old are you? have you dare ask the ultimate question how long do i have? they have told me 2yr approx. 6mth without treatment, started chemo today i hate it!!! i have to look into the faces of my children and wear my cloak as i call it, play silly games with them when i feel like crying, laugh and joke, i need a friend my husband is breaking down. but plz remember that you have been given a chance, you are not alone, and at the very least , the only good thing is we know. and not nipped to the shop and run over and just gone. i have the chance to say goodbye, so do you. is this our bonus? i am sorry if i have been of no help to you, i just wanted to let you know you are not alone, and everyday is a bonus. good luck! i wish you well.

  • FormerMember
    FormerMember

    Hi BigDave

    I've been diagnosed since nov 08. they found a tumor on my right knee, or i would've never knew i had cancer. It was givin me problems for about 1yr until i finally went in and dr gave me cortizone shot in the knee but the pain came back 6months later. went back in to get my miracle shot but he wanted to further investigate so i said fine. and then next thing you know i'm be sent to some specialist over 800 miles away from my kids. Did all kinds of test (like we all have to, right?) got tired of being poked, proded, & evaluated finally. for the longest time all I could think was 'cancer' go to sleep 'cancer, wake up 'cancer'. I'm beginning to hate chemo cuz I would have to be the 1 in 1000 or so to have an allergic reaction. I spend over 30hrs in the hospital recieving my chemo. told my husband i'm not going anymore i don't like it. But prayer and my faith convinces me other wise. That's the only way I've made it so far. is through prayer from my family, friends, church family too.

    I hope that everything works out for you, and i know your family will be the greatest support. also friends. they always come through for you. 2 of my friends went through cancer personally or close family member. & they both told me it's ok to cry, it's ok to be scared. You can cry don't be afraid. Don't be afraid to ask for help. were all here for you. so don't be afraid to cry and ask for help.

    Take care bigdave I hoped this helped. they are lots of people on this site to support you too.

    Funny thing tho - why are big guys afraid of little needles? go figure?

  • FormerMember
    FormerMember

    Somehow, I think it's harder for men to deal with illness whether in themselves or in a loved one.  My husband is having a very difficult time handling this and I could feel the strain between us.  There are so many things we need to talk about like out fears but it's just too painful right now.  My son was hospitalized for a month while they tried to find out what he had, but there was a 3-day interval when we were able to go home. My husband and I revisited a counselor we had been seeing 10 years ago.  It was only in the privacy of the counseling room that we were able to air our thoughts and feelings;  it was helpful to be talking to a third party who was supportive and non-judgmental.  Also, hearing him helped me understand where he was and what he was going through.  We have different ways of perceiving things and processing what is happening,  I was able to appreciate how hard he was trying to cope with the situation we were thrust in.

    People tell me that usually with cancer there's a 5-year period to watch out for after which he can be in the clear.  They also tell me to make the most of it because you never know how it will go.  Painful as this is to hear, comparing it to when we first thought my son was too far gone, I am grateful that we have a fighting chance and that he is still with us.  No, I have never had the courage to ask the ultimate question.  I just tell myself that God is doing what is best for my son.

  • FormerMember
    FormerMember

    Hiya Dave, Im another kidney cancer member.

    Not a lot to do or say just yet until you find out the type, stage ( the size and whether there is any spread)  and the grade.( How aggressive it is)

    Its not neccesarily the end of the world mate, and I know its not easy but try and stay focused until you know more about your problem.

    You say you have had a CT scan, and dont mention any spread which is excellent.

    Have a good look around the Kidney forum on this site as theres shedloads of information donated by the rest of us who've been through it.

    As I say you wont know anything until is out. Lets hope it is small as you suspect.

    Good luck with the next few weeks and with any surgery you might have and dont think twice about asking for help with anything.