ups and downs

1 minute read time.

Having a rocky time at the moment, Clive seems to have increasing levels of Calcium in his blood which they are keeping an eye on, and is very short of breath all the time. He has a small pleural effusion which they are trying to treat with antibiotics or steriods. all this is a worry. I have looked it up and it all seems quite common in advanced cancer, i didn't say anything to Clive, but he has now looked himself and  realises time is running out. I do feel quite emotional at the moment.

 We have been to see the most fantastic Palliative care consultant at Derby , she is so caring and thorough and looking after us both, she is so on the ball with pain relief and symptom control. I have packed in work as it was causing difficulty as I worked over lunch time and had to provide my own cover if I couldn't make it ,which as we have more hospital visits it gave extra stress I didn't need. So I am relieved to be officially retired at 42!

My brave face is still in place, am trying to be strong for the kids, am not sure if we should be filling them in a bit more on proceedings. i will see the Macmillain nurse soon for some advice.

Anonymous
  • FormerMember
    FormerMember

    Its great that you have the support of a good palliative care consultant,and Clive being pain free is so important. Im so sorry your finding everything hard going

    it must be heartbreaking to watch Clive going down so fast, and its not easy staying strong. On top of everything else you have to find the words to tell your

    children that there Dad is not getting better. My heart goes out to you ,and i

    send you a Big Hug ,wished i could be

    of more help, but i will be here if you want to talk.

    With Love Lucylee. xxxx

  • FormerMember
    FormerMember

    Thinking of you both.

    Keep the brave face on - I know you will.

  • FormerMember
    FormerMember

    Thinking of you - as a mother of 2 sons, I can imagine how hard it must be to decide what to tell them. I hope the mac nurse will be able to help. Love Val