Is it normal to give in to the tiredness (or am I just a lazy bum)?

1 minute read time.

I've been on chemo (5FU + Oxaliplatin + Avastin) since March, for colon cancer diagnosed in February; round nine is coming up this week. I've been off work since before the diagnosis. Right after diagnosis I got very sick and was three weeks in hospital, lost well over 20 kg, and came out of hospital very weak and with poor mobility.  I got stronger in the first weeks, but as the chemo side effects accumulate, I'm finding it harder and harder to find the energy to do even basic household chores.

When the tiredness hits me, I've tended to take to bed, or fall asleep on the sofa. This infuriates my partner, who thinks that I should be making more of an effort to stay active (he conveniently ignores the days when I've managed to mow the lawn, or clear a heap of ironing, or have a meal cooked from scratch on the table for him). There have been several vile arguments, including one in which he accused me of "enjoying" the experience of being a cancer patient. Two weekends ago, after we spent Saturday at a wedding and I got over-tired, I spent the Sunday in bed in pain and running a fever, and I don't think he's ever going to let me forget it ("20 hours in bed!").  It turns out the pain was because I have DVT in my left leg, a classic oxaliplatin side-effect, and although my consultant says that being too sedentary would not have caused this, my partner is convinced I brought this on myself by being in bed too much.

So, a question to the rest of this community. If you yourself have been or are on chemo, how are you coping with the fatigue it can cause (not to mention the depression of being sick with this disease)? Am I being the lazy bum my partner says I am, when I give in to the urge to lie down and sleep during the day?  Any tips for coping strategies to push through the fatigue and keep going?

And generally, does anyone have any tips for helping a partner through the experience of being a carer? He's stressed out by my situation, and by taking care of me, but we've reached a point where he can't see things from my perspective. 

Anonymous
  • FormerMember
    FormerMember

    I'm so sorry you are going through this horrendous experience. Unfortunately, the chemo has a cumulative effect and the side effects tend to worsen as time goes on. Tiredness is one of the most common side effects and having been through it the only advice I would give is to lie down and rest when you require it.

    I am six and a half years since diagnosis and I can tell you I still tire very easily. I was also diagnosed with M.E. about four years ago, so that certainly doesn't help matters.

    Fortunately I have a husband who is really understanding and supportive.

    Perhaps your partner could do a bit of research either on the net or in the library on the side effects of your treatment which would make him realise you are not being lazy or selfish. Perhaps even if you have a macmillan nurse he/she could find him some info on this.

    I'm sure your partner is very frightened by all this himself and sometimes if we are frightened it can come out as anger or frustration.

    I hope things settle down for you soon. Hopefully it won't be long till your treatment is finished and you can start to recover, which, I have to add, won't be overnight. So, take whatever time you need to get fully fit and if that includes resting and sleeping, so be it!

    Best wishes, Christine xx

  • FormerMember
    FormerMember

    Hi there...i had chemo and like Christine...i suffered from fatigue...and still do some days...and i was told not to fight it...give in to it and sleep or just rest if thats what i needed to do...you are certainly not lazy....you are going through a tough ordeal...and like Christine said...maybe your partner is frightened and frustrated..but unless you have been through chemo you really cant understand how it feels...and its so difficult to explain to someone. Again i agree with Christine...get some info on the effects of chemo for your partner to read..maybe it will give him some insight...in the meantime...sleep and rest as much as you need to...take care....love Sharon xx

  • FormerMember
    FormerMember

    Hi Ya Kalanika,

    Naw your just a lazy Bum.  Joking aside you will feel tired for a long time to come.So when your body says rest you rest.this tiredness thing Ive had it now for 12 yrs and still tire very easily. Its something you are going to have to get used too and it wont be easy. So all the best.

    Take care and be safe Big Hugs love Sarsfield.xxx

  • FormerMember
    FormerMember

    Hi

    I am currently going through chemo and am always saying that my mantra is 'if its a good day get up and do something, if its not stay in bed'. I have found this works for me and fortunately my days have been more good than bad. I have just had my 4th chemo and I am finding the tiredness hits me more each time therefore I rest more. I don't think you're being lazy and there's nothing needs doing that won't wait so take it easy. Perhaps your partner is worried or afraid and your being in bed makes him more aware that you're ill and if you're up and about he thinks you're ok, just a thought.

    Wishing you well

    Maxine

  • FormerMember
    FormerMember

    Hi there

    I am a carer and my partner experiences the very same problems as you do.  He often spends whole days on the sofa and finds it very hard to do anything.  I've accepted this as a side effect of the chemo and let him rest when he needs it.

    We've found that the first week and a half is the worst, after which he regains a little strength each day and manages to do little jobs and venture out for a short walk.  We make the best of the good days.

    As for your partner having no sympathy.  I'm sure he does in his own way but perhaps he's finding it hard to accept how ill you are.  I don't resent John feeling unwell, but it does stress me out and I get a little snappy at times thinking that he might be exagerating his symptoms.  

    Sometimes it seems that all I hear about is how unwell he feels and he catalogues each and every symptom of his cancer.  We live and breathe cancer on those days and it's hard to lift him out of it.

    Cancer is certainly taking a toll on my mental and physical health, so perhaps your partner feels the same.

    Lastly, don't feel guilty about feeling so tired and you are NOT a lazy cow.  You must rest when you feel the need.

    Hope this all makes sense to you.

    Take care.

    Love and *hugs*

    Marjorie x x x x