3 weeks in to treatment and really struggling

Less than one minute read time.

Hi 

I am new to the forum so firstly to introduce myself. I am 52 and was diagnosed with HPV positive squamous cell carcinoma in 3 lymph nodes but the primary was not found. They took my tonsils out when they did the biopsy and are working on basis the primary was base of tounge. 
I have done three weeks of radiotherapy and 3 cycles of chemo. I have been told the radio therapy is the most important treatment. The chemo just adds a little extra to it. 
I am now really struggling and can’t really face another chemo session. It worsens the side effects and makes me feel dreadful. My mouth is so sore and my throat so painful like glass and sandpaper. I dread eating it’s such a horrible experience. 
I just don’t know how to get through the next three weeks of treatment. 
I do have a tummy peg and having me using to take meds as they make me vomit if I take them orally. Not started using for food yet. Need to discuss with the team this week. 

Ghhv
  • Former Member
    Former Member in reply to Former Member

    Hi sorry it sent too quickly also! Yes into week two after treatment now and starting to feel better slowly. Managing to sip some water every day. Meds and feed all through peg. Lost about a stone as it’s quite hard getting enough feed through peg as it takes a long time otherwise I start to reflux. But not too worried about that. All my jeans fit now very well! I have just been for a dog walk in the sunshine which lifted my spirits. Thank you for your encouragement. All the best x 

  • Former Member
    Former Member in reply to BennyM

    Sorry I am having trouble with this app but have replied to my first comment which sent too quickly doh ! Hopefully you can read that… 

  • Yes I can read your comments. It sounds as though you’re doing very well Ok hand Best, BennyM