Bert has Myelodysplasia after a few months remission from AML His Myelodysplasia which will evolve back into AML, although they can't say when. they said he needs to have a bone marrow transplant to have any life, we have to go back in 2 weeks as it will change quickly.bloods have stayed the same since last week and they will monitor him closely They have emailed the bone marrow team in Glasgow to get the ball rolling and start the search for a donor. We are not even sure at this stage that the transplant team wil do the transplant as last time the just said they would revist it when the time came and that Bert was to get himself fit, He never got the chance to get fit although he has put on weight they might consider a "mini transplant" But we will need to wait and see We are both completely gutted and have not really come to terms with it we were just getting used to him being in remission in the first place
Love Teri
FormerMember
Oh dear - I am so sorry to hear this - I thought he was doing so well. As you know I have AML too but have gone down the naturopath route as opposed to chemo. My thoughts anhd prayers are with you!!
Gutted! What a good description to how we can all feel with our cancer journey. I'm very sorry to hear this is going on and will keep you both in my thoughts and prayers and hope that some miraculous things occur that make it more hopeful for you both!
Sorry to hear this. Bert's had such a rotten time for ages and now this. I'm not surprised you're gutted. but where there's life there's hope and he ain't dead yet. Good luck. I'll be thinking of you both.
hi teri, logged on to see how things went today, you both must be devastated especially with what bert had to go through to get into remission in the first place. its such a long process. I am really hoping they will do the transplant and find a match, i know they tested his siblings but someone told me that your children can be a match, don't know if that is correct but worth looking into?. this disease is so strong it seems so hard to get rid of it for good. i was reading binnies page and her mum also has it back its so worrying. i will be thinking of you both and please keep me posted on whats going on.I feel like ive been through this with you from the start and i really want to see the happy ending. Shelley. x
